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Community is about sharing, supporting each other, and having a voice. This is where
you can be heard in an open forum on topics that are important to you. You’ll find hope, insight, answers, and the awareness that if you are suffering from lupus, you are not alone. We invite you to share your own story and take part in the discussion.
Join in. We’re listening.
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I am eighteen years old. Last Friday I woke up to a swollen and red eye-ball. I thought I had just scratched it and so I didn't think too much of it....[more]
Read moreOkay, this has been a very surprising couple of months. I was diagnosised with fibro over ten years ago, so I have a tendency to ignore most of my pain. So, about two months ago I hurt so bad I could not move!...[more]
Read moreHello everyone i am a 25 yr. old female that is suffering from alot of joint pains ESP. In my thumbs & hands..sometimes my arm will ache even my leg..I get really bad headaches on occasions even random tingling down the back of my head / ne...[more]
Read moreI am now 63 years old and about 15 years ago I started having joint pains and strange blood tests, feeling not well. I went from doctor to doctor wanting an answer. They kept giving me pain pills which I didn't want....[more]
Read moreAfter feeling fatigue and over all body pain, and every test under the sun. My doctor told me I had little soldiers in my body that were attacking my good blood and tissue. He said it was fibromyalgia....[more]
Read morehi
my names Sarah im 22 years old and i have a 15month old daughter. for the last year we have been in and out of hospital trying to work out why my daughter contracted a rare type of meningitis, after several tests she was given a blood ...[more]
Read moreI have been having what appeared to be lupus symptoms for the past 5 months and finally had an ANA test done. That and all my other tests have came back normal. Right now I'm so disgusted because I have no idea what's happening to my ...[more]
Read moreI have lots of pain, stiffness, burning, numbness on my hands, arms, feet, ankles and knees, fatigue,blood issues I had not ever had before, it flared up last August 2011, had another flare this week and it seems to get worst before my peri...[more]
Read moreMy name is Kelley and I am 19 years old. My freshman year of college (last year) I was really sick. I had trouble breathing, shortness of breath, extreme fatigue, achy joints, all the tell tale signs that something is not right....[more]
Read moreThe woman shown on the front page named Lillian passed away February 24, 2012....[more]
Read moreI really started noticing symptoms when I returned from my honey moon in Hawaii in early Oct. 2003. Joint pain in hands, wrists and ankles, muscle pain, recurrent episodes of pleurasy, chest pain, migraine headaches (wich I have suffered f...[more]
Read moreHi. I'm 19-years-old. I suffer from anxiety, but I have had body aches and fatigue for a year....[more]
Read moremy dee-dee is 16 and has lupus her kidneys are not working very well she only has 50% of function left its such a pain not knowing much about this disease called lupus...[more]
Read moreI don't even know where to begin. Seems so familiar, sitting here at the computer posting on one forum or another, looking for answers. Long story short, joint pain, swollen lymph nodes, exhaustion, malaise, hands and feet swelling, br...[more]
Read moreHi i just turned 21 for the past 3 years plus. i have had brain MRIs and they show a non-specific scattered right matter i went to see a nuro and he thinks its MS but i think its lupus. i also have ulceratvie colitis which is an auto immune...[more]
Read moreToday I couldn't stop urinating. At least 15 or better times this day. Tonight I am in so much pain from eating that I don't know what to do....[more]
Read moreI have been sick with weird, unexplainable symptoms for the past 2 years or so. All my tests come out Perfect as I am told. Symptoms are so unusual that the best explanation is to go back to my old phsychiatric record and name it depressi...[more]
Read moreHi, I'm fifteen. I have several of the symptoms of lupus (sleeping problems, i.e. I'm either always tired and sleep for twelve+ hours or don't sleep for several days at a time, I get odd pains in m chest sometimes that come and go ...[more]
Read moreHello. My name is Nicole and I'm a black woman. I just turned 36 two weeks ago....[more]
Read moreMy issues started about 4 months ago with pain in the tops of my feet. Any shoes I wear make the pain worse. Then pain then spread to my ankles, knees, elbows, hands and fingers....[more]
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