Centers For Disease Control and Prevention (CDC)

The federal Centers for Disease Control and Prevention (CDC) is working with some states, including Georgia and Michigan, to create lupus registries that better estimate the occurrence of lupus in the population.

The National Center for Chronic Disease Prevention and Health Promotion, part of the CDC, has implemented the National Lupus Patient Registry for Caucasians and African Americans in 2 counties each of Georgia and Michigan, and is expanding to additional sites in other states to address Hispanics, Asians, and American Indians/Alaska Natives. The Lupus Foundation of America (LFA) will work closely with the Center to promote the registry and educate the public and the lupus community about its operation.

Program objectives:

1. Collect data regarding the prevalence and incidence of lupus in various ethnic groups.

Contact:
Centers for Disease Control and Prevention
1600 Clifton Rd.
Atlanta, GA 30333
Toll-free: 800-CDC-INFO (800-232-4636)
TTY: 888-232-6348, 24 hours a day
Email: cdcinfo@cdc.gov
Website: www.cdc.gov/arthritis/

Additional materials and information:

• Go to www.cdc.gov/arthritis/basics/lupus.htm to find the CDC Arthritis Program web page with links to references and resources with information on lupus. Some of the websites listed there have links to online communities where people with lupus meet and share messages for emotional and spiritual support.
• Browse the CDC’s Office of Minority Health and Health Disparities (OMHD) website at www.cdc.gov/omhd/AMH/factsheets/lupus.htm
• Link to www.clinicaltrials.gov, a registry of federally and privately supported clinical trials conducted in the USA and around the world.