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Normal Appearance (exactly one year after treatment)
With Cushing's
“It took 3 years with a multitude of symptoms to get a diagnosis. I’m so thankful this disorder is treatable.”

Cushing's is a little known disorder that causes a wide variety of symptoms, including abdominal weight gain, a puffy round face, muscle weakness, diabetes, high blood pressure, and many other symptoms.  Cushing's symptoms occur when the body is overexposed to a hormone called cortisol.  Cortisol is corticosteroid hormone that is naturally produced by the adrenal gland.

While the most common cause of Cushing's is exposure to corticosteroid medications such as prednisone and others used in injections and creams, a small percentage of the population develop Cushing's due to a tumor on the pituitary gland, the adrenal gland, or elsewhere in the body. Because Cushing's caused by tumors is a relatively rare disorder and some of the symptoms are common in the population, many patients with Cushing's are not tested for the disorder and continue to go undiagnosed.

The Cushing's Support and Research Foundation is a 501 (c) 3 non-profit organization dedicated to supporting patients with Cushing's and their families. Since 1995, the CSRF has provided information for patients on the medical aspects of Cushing's, put patients in contact with other patients and worked to increase awareness in the general population and the medical community. We are supported primarily by membership and individual donations and would greatly appreciate your support


What's New
Spotlight
I think I have Cushing's
   
Endocrine Society Guidelines for the Diagnosis of Cushing's
Help Spread the Word! - Download a brochure to distribute!
A Report From American Academy of Pediatrics
   
  more what's new
   

FDA approves Korlym for treatment of Cushing's in patients with Type 2 Diabetes. For more information, click here.

Corcept, the manufacturer of Korlym, anticipates Korlym will be available May 1, 2012. Until then, patients can be enrolled in a compassionate use program.

Results of Phase III trial of Signifor (pasireotide, SOM 230) used to treat Cushing's Disease published in the New England Journal of Medicine.

   

Not every Cushing’s patient gets every symptom, so Cushing’s cannot be ruled out strictly by the presence or absence of certain Symptoms.  The diagnosis of Cushing’s requires appropriate Testing for the disorder. If you suspect you have Cushing's, print the highlighted sections, discuss them with your primary care doctor and ask to be tested.  If you are diagnosed or have difficulty getting a diagnosis, consult with an expert Cushing's Doctor.

   
  more information
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