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FYI from the NHLBI Index
May 2012: Vol. 13, Issue 1
Summaries of Meetings
and Announcements of Upcoming Events
National Heart, Lung, and Blood Advisory Council February Meeting
Upcoming NHLBI Workshops and Working Groups
National Heart, Lung, and Blood Advisory Council February Meeting
February 15, 2012
Dr. Shurin welcomed members to the 245th meeting of the National Heart, Lung, and Blood Advisory Council.
Dr. Shurin welcomed three new Council members: Dr. Pamela Douglas, Ursula Geller Professor of Research in Cardiovascular Diseases, Duke University School of Medicine; Dr. Ron King, Chief Science and Business Officer and Co-Founder, Bio-Accel; and Dr. Barbara Konkle, Director, Translational Research, Puget Sound Blood Center.
Dr Shurin updated the Council on NHLBI leadership appointments: Mr. Ariel Herman is the new Deputy Executive Officer for the Institute and Dr. Jamie Siegel is the new Chief of the Hemostasis and Thrombosis Branch in the Division of Blood Diseases and Resources.
Dr. Shurin announced that beginning in 2013, February Council – like September Council – will be a virtual meeting.
Dr. Kathy Hudson, Deputy Director for Science, Outreach, and Policy at the NIH and Acting Deputy Director of the National Center for Advancing Translational Sciences (NCATS) updated the Council on revising the Common Rule on protection of human subjects. She also noted that the NIH will be devoting $1 million in bioethics research funding to the development of an evolving, evidence-based approach to ensure effective protection of human subjects.
Dr. Shurin informed the Council of NIH leadership appointments: Dr. Thomas R. Insel, Director, National Institute of Mental Health, has been appointed Acting Director of the NCATS and Dr. M. Roy Wilson has been appointed Deputy Director, Strategic Scientific Planning and Program Coordination, for the National Institute on Minority Health and Health Disparities.
Dr. Shurin discussed the FY 2013 President's Budget. The proposed NHLBI budget remains relatively flat overall, with a total increase of just over 0.02%, or approximately $709 thousand. However, the Research Project Grant (RPG) line would decrease slightly, in part due to a mandated increase in Small Business Innovation Research/Small Business Technology Transfer funding from 2.95% in FY 2012 to 3.05% in FY 2013.
The Institute remains committed to the idea that fully-funded strategic investments are more likely to thrive than investments receiving across-the-board cuts. The Institute will also continue to support three main scientific priorities: discovery research (including genomics, systems biology, and modeling), regenerative medicine, and translational research.
Dr. Shurin discussed the Council on the Global Alliance for Chronic Disease, of which she is now the chair.
Dr. Arun Chockalingam, Director of the NHLBI Office of Global Health (OGH), discussed the role of the OGH in facilitating and coordinating global health efforts across the NHLBI; interacting with other NIH Institutes and Centers, the Department of Health and Human Services, and the U.S. Department of State; linking with other national and international organizations; and managing programs in partnership with NHLBI program divisions.
Dr. Denise Simons-Morton, Director of the NHLBI Division for the Application of Research Discoveries, presented background and the current approach on development of NHLBI-sponsored clinical practice guidelines. She noted that review and clearance of guideline reports now includes Council review.
Dr. Stephen Daniels, Department of Pediatrics, University of Colorado School of Medicine and Children's Hospital Colorado; and Chair, Expert Panel on Integrated Guidelines for CV Risk Reduction in Children and Adolescents, discussed the guidelines, which were released in December 2011. He noted that guidelines should not be considered a final product, but rather a continuously revised one that evolves along with their evidence base.
Dr. Stephen Mockrin, Director, Division of Extramural Research Activities, NHLBI, presented the delegated authorities to the Council. Delegated authorities allow NHLBI staff to perform specific functions without Council involvement, thereby adding flexibility and decreasing the burden on the Council. The Council agreed to continue the current policy of Delegated Authorities for another year.
Full minutes of Council meetings and summaries of the initiatives are available.
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Upcoming NHLBI Workshops and Working Groups
PIO representatives will be accommodated on a space-available basis and will be responsible for their own travel and lodging expenses.
Functional imaging for Regenerative Medicine (A $100 registration fee is required.)
Location: NIST, Gaithersburg, Maryland
Date: May 31 - June 1, 2012
Contact: Dr. Martha Lundberg
Annual Sickle Cell Disease Meeting
Location: Bethesda, Maryland
Date: August 20 - 22, 2012
Contact: Dr. Harvey Luksenburg
Mechanistic Perspectives on How Sex Hormones Induce Thrombosis in Women
Location: Bethesda, Maryland
Date: September 13 - 14, 2012
Contact: Dr. Jamie Siegel
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Upcoming 2012 Events
Mended Hearts
Annual Convention 
Date: May 16 - 21, 2012
Location: Dallas, TX
Aplastic Anemia and MDS International
Foundation, Inc. 2012 Patient and Family Conference
Date: May 19, 2012
Location: Atlanta, GA
Date: July 28, 2012
Location: New York City Area, NY
Date: September 22, 2012
Location: Dallas, TX
Alpha-1 Association
21st Annual National Education Conference
Date: June 8 - 10, 2012
Location: Seattle, WA
National Heart, Lung, and Blood Advisory Council
Date: June 13, 2012
Location: Bethesda, MD
Tuberous Sclerosis Alliance
2012 Regional TSC Conference Series
Date: June 15, 2012
Location: Washington, DC
Date: June 23, 2012
Location: Houston, TX
Pulmonary Hypertension Association
10th International PH Conference and Scientific Sessions
Date: June 22 - 24, 2012
Location: Orlando. FL
Barth Syndrome Foundation
6th International Scientific, Medical, and Family Conference
Date: June 25 - 30, 2012
Location: St. Pete Beach, FL
Parent Project Muscular Dystrophy
2012 Connect Conference
Date: June 28 - July 1, 2012
Location: Ft. Lauderdale, FL
Cooley’s Anemia Foundation
2012 Patient Family Conference
Date: June 29 - July 1, 2012
Location: Cambridge, MA
TOPS (Take Off Pounds Sensibly) Club, Inc.
2012 International Recognition Days
Date: July 5 - 7, 2012
Location: San Diego, CA
American Association for Respiratory Care
Summer Forum and Meetings
Date: July 12 - 15, 2012
Location: Santa Fe, NM
Platelet Support Disorder Association
ITP Conference 2012
Date: July 20 - 22, 2012
Location: Denver, CO
Scleroderma Foundation
2012 National Patient Education Conference
Date: July 27 - 29, 2012
Location: Grapevine, TX
National Marfan Foundation
28th Annual Conference
Date: August 2 - 5, 2012
Location: Chicago, IL
Fanconi Anemia Research Fund, Inc.
Annual Family Meeting
Date: August 10 - 13, 2012
Location: Casco, ME
Sudden Cardiac Arrest Association 2012 Annual Conference Program
Date: September 13 - 15, 2012
Location: Orlando. FL
Vascular Disease Foundation Annual Meeting
Date: September 21 - 23, 2012
Location: Tysons Corner, VA
PXE (Pseudoxanthoma Elasticum) International
2012 Biennial Conference
Date: September 22 - 23, 2012
Location: Bethesda, MD
Sickle Cell Disease Association of America, Inc.
40th Annual Conference
Date: September 25 - 28, 2012
Location: Baltimore, MD
First Candle / SIDS Alliance
2012 International Conference on Stillbirth, SIDS, and Infant Survival
Date: October 5 - 7, 2012
Location: Baltimore, MD
Narcolepsy Network 27th Annual Patient Conference
Date: October 19 - 21, 2012
Location: Cleveland, OH
HHT (Hereditary Hemorrhagic Telangiectasia) Foundation International National Conference
Date: October 26 - 28, 2012
Location: Orlando, FL
National Hemophilia Foundation 64th Annual Meeting
Date: November 8 - 10, 2012
Location: Orlando, FL
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Last Updated May 2012
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