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Shwachman-Diamond Syndrome Foundation - SSS

Organization URL(s)

info@shwachman-diamond.org
www.shwachman-diamond.org  

Other Contact Information

127 Western Avenue

Sherborn, MA 01770

888-825-SDSF (7373) (Voice - Toll-free, Fax)

Description

The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization is to support families dealing with this rare disease, to advocate research, disseminate medical information and raise public awareness.

Print Resources

Books, pamphlets and periodicals/newsletters are available. Italian, Dutch and French language materials are also available. There is no charge for items.

Related Topics

Topic Rare Diseases Schwachman Syndrome

Review Date

Tue Aug 17, 2010