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Angioma Alliance

Organization URL(s)

Info@angiomaalliance.org
www.angiomaalliance.org/  

Other Contact Information

142 W. York Street, Suite 708

Norfolk, VA 23510

866-432-5226 (Voice - Toll-free)
757-623-0615 (Voice)
757-623-0616 (FAX)

Description

Angioma Alliance is a non-profit international patient advocacy organization created by people affected by cavernous angioma (cerebral cavernous malformation). The organization works to inform and support individuals affected by CCM while facilitating improved diagnosis and management of the illness through education and research.

Print Resources

A patient information brochure is available in English and Spanish through the Web site. A quarterly newsletter is available online or by mail that features information on latest research findings and ongoing studies, news of the organization's activities, and information of particular interest to those affected by cavernous angioma.

Related Topics

Topic Birth Defects Brain Diseases Hemangiomas

Review Date

Fri May 15, 2009