Thursday, September 27, 2012

Welcome to KS&A

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How can we assist you?




HELPLINE
We are as close as your telephone and offer support through a network of volunteers for each of the conditions we serve. You may access this network by calling KS&A on our toll-free number from anywhere in the U.S. or Canada, (888) 999-9428, or from outside the U.S. at (303) 400-9040.  You may also send email to helpline@genetic.org. Please provide your email address, phone number and location.  International callers, provide your country code.  Please let us know if this is an emergency.
IMPORTANT NOTE:  This is a helpline only.  Please do not call this number for general inquiries.
All general inquiries should be directed to info@genetic.org.  If you need to speak with someone by phone, please send your number along with your email message.



 Become a Member Today

 Benefits include:

  • Unlimited access to the online discussion groups (Forums). ONLY MEMBERS will be allowed to subscribe to KS&A’s discussion groups.
  • A 10% discount on the full price of registration fees for our Families’ Conferences. The average member discount is $45 or more.
  • Over 66% discount on KS&A’s series of webinars with medical professionals. 
  • 50% discount on KS&A’s large library of training videos from past conferences.

Subscribe to a Discussion Group


Tap into a network of hundreds of real people dealing with the same issues as you. KS&A offers several discussion forums that give you an opportunity to ask questions, exchange ideas, information, news, comments or whatever related to X and/or Y chromosome variations. Learn more about these discussion forums and register today.

  

Your Email Address is Vital

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In these days of social media and telephone access to the internet, email contact is vital to running a nonprofit health advocacy group.  If you do not already receive regular emails from KS&A, please register your email address.  Send email to info@genetic.org.

Also, please register for our email newsletters and broadcasts.


For Email Marketing you can trust

Special Deals

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Stider PreBike Logo  makes it easy for Toddlers 1 to 5 years old to learn to balance on two wheels on and off-road.

15% of your purchase will go to KS&A!
Spring is here!  Do you have your Strider PREbike?

Strider preBikes


Shop for Trisomy X!!

TrisomyX Shop Logo Click Here to Visit KS&A’s New Store for Trisomy X Apparel
Wear your eXtra X Proudly!
A portion of each sale benefits KS&A

  

Announcements

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FREE Webinar - Save the Date!


Coming October 4, 2012, 8:00 PM Eastern Time: REGISTER NOW
  • Title:  "Your child with KS: What to expect during puberty" 
  • Presenter Ilene Fennoy, MD, MPH 
  • Click here for more info
 

TRISOMY X Skype Chat October 20 -- New Facebook group for Trisomy X girls and women only.


NEXT SKYPE CHAT:
Saturday, October 20, 2012 12:00 PM - 1:30 PM Pacific Coast Time.
Click here for details
All-new Facebook support group for Trisomy X girls and women only.
Click here to join
 

NEXT MEETING: New York /Tri-State Regional Support Group


X and Y Chromosome Variations
(XXY, XYY, XXX, XXYY, XXXXY, XXXX, XXXY, XXXXX)

The next meeting is scheduled for October 14
Click here for more info 

BREAKING NEWS: New Genetic Test for X and Y Chromosome Variations now on the market.


JS Genetics announce a new genetic test based on a buccal swab.
The test is on the market now, and costs considerably less than a karyotype.  Your doctor or any other medical professional who has an "NPI Number" can order and administer the test.  Current price billed to insurance is $465. 

KS&A will feature more information on this test as details become available. 

GUIDEBOOK:  On Sale Now!

GUIDEBOOK: On Sale Now!



Courthouse Cowboys - Book featuring a man with Klinefelter Syndrome


Courthouse Cowboys - A Modern Tale of Murder in Montana

This important book explores the legal struggles of a man who has Klinefelter Syndrome.

Click here for more info.
 

IMPORTANT NEW TRISOMY X STUDY - Please Participate


Trisomy X Capstone Research Project:  is an important study being conducted in conjunction with the eXtraordinarY Kids Clinic at Children's Hospital in Denver.
Click to learn more and participate. 

Dear Abby, Dear Abby...


KS&A was founded on the response to a letter to Ann Landers written by our founder, Melissa Aylstock.  David Drexler, a long-time volunteer with KS&A and member of our communications committee, has written a beautiful, compelling letter to Dear Abby.  Please write to Dear Abby and share your letter with us.
Click here to read David's letter

Understanding Klinefelter Syndrome: A Guide for XXY Males and Their Families



Comprehensive Report!


  
Copyright 2012 by KS&A