FIRST is a national non-profit organization connected to its members and families by the special skin and unique management needs of individuals affected with ichthyosis and related skin types.
Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Governed by a Board of Directors and guided by a Medical & Scientific Advisory Board, FIRST provides accurate and timely information to meet the medical, social, and educational needs of our community.
Calling All Ichthyosis Patients - Gene Discovery Opportunity
Dr. Keith Choate and his team from Yale University are hosting a clinical and genetics study dedicated to an increased understanding of ichthyosis. Read More
Dr. Keith Choate and his team from Yale University are hosting a clinical and genetics study dedicated to an increased understanding of ichthyosis. Read More
Skin Advocate App for iPhone is Available!
Allows dermatologists to quickly provide patients with support group information. Read More
Allows dermatologists to quickly provide patients with support group information. Read More
Study for a New Topical Medicine
Galderma is sponsoring this study at Northwestern University in Chicago, Illinois. Read More
Galderma is sponsoring this study at Northwestern University in Chicago, Illinois. Read More
Ichthyosis and Hearing Loss Survey
Here's your opportunity to help us better understand how ichthyosis affects your hearing. Read More
Here's your opportunity to help us better understand how ichthyosis affects your hearing. Read More
11th Annual Monster Dash Fun Run in Texas
Friendswood High School in Texas is the site of this fantastic annual event. Read More
Friendswood High School in Texas is the site of this fantastic annual event. Read More
2012 Clinical Scholar Program applications are being accepted
FIRST is currently accepting applications for an Ichthyosis Fellow. Read More
FIRST is currently accepting applications for an Ichthyosis Fellow. Read More
