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Welcome to the National Niemann-Pick Disease Foundation Website

The National Niemann-Pick Disease Foundation supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and we provide support services for individuals and families affected by NPD. Our Vision...is a world where Niemann-Pick Disease is no longer a threat to a full and productive life for patients and their families.

A Message from NNPDF Chair Karen Quandt   
      

NNPDF's 20th Anniversary ~ October NPD Awareness Kick-off Event!
Check back here for more information to be posted soon!

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NNPDF to Mark 20 Years of Helping Families and Advancing Research
in 2012

20th anniversary logo

Read more about this milestone

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scientist in lab

Niemann-Pick Disease Research

 

Foundation Newsline

Scientist with microscope

The NNPDF is pleased to announce a Request for Applications for the first Edward H. Schuchman Postdoctoral Research Fellowship for study of the biology of Acid Sphingomyelinase Deficiency (ASMD; Types A and B Niemann-Pick Disease).

Applications are due May 1, 2012, with the fellowship to begin September 1, 2012.

More information and application procedure


NEW!
  PERSEVERE Window Decals Available!  Proceeds Benefit the NNPDF

Foundation News:

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International Niemann-Pick Disease Organizations

Research News & Announcements:


Dr Marc Patterson
Mayo Clinic Podcast
featuring Dr Marc Patterson
on Niemann-Pick Type C.

Family Resources & Support:

The Progression of NPC in Two Children's Lives

Adam three years old
Adam Ward, NPC
1/13/90 - 6/4/00
Stacey Vorpahl
Stacey Vorpahl, NPC
1/3/85 - 10/9/04
Mia's NPA Timeline
Mia Walts, NPA
5/31/09 - 10/29/11
Mia Walts

“The National Niemann-Pick Disease Foundation (NNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the NNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.?

This Web site is a service of the National Niemann-Pick Disease Foundation's Family Services Program, made possible by the financial support of our member families and other generous donors and grantors.  This site receives no government funding, nor does it host or receive funding from advertising or from the display of commercial content. 

This site complies to the HONcode standard for trustworthy health information: verify here.

The National Niemann-Pick Disease Foundation is a 501(c)(3) organization.  Your donations are fully tax-deductible.

Web Site updated  6/19/2012    Donate Now button

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.