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©Family Caregiver Alliance
 
Connections, e-Newsletter
topSummer 2012

Volume 2, Number 2   

 www.caregiver.org

(800) 445-8106

Table of Contents 

 

Letter from the Director

California Budget Cuts


Lead Article Topics 

- Baby Boomers w/ Aging Parents Need Resources   

- Yoga to Improve Caregiver's Quality of Life 

- The OTHER Side of 50:  

  CA Caregivers in Poor  

  Health

- Proposed CA Budget Cuts Could Affect 12,000 

- Quote: on "Family"
- The Power of Song for   

   Those w/ Alzheimer's  

   Disease and Caregivers
- Help for Being a  

  Caregiver  

- Planning Today for Tomorrow legal workshop
- Take Time to Smell the Roses 

- What's Up Doc?  

 

Community Health Fairs/Special Events
    - 5/11 African American
      Caregiving & Wellness
      Forum
    - 5/15 Aging and Disability
      Technology Summit
    - 5/16 Annual Alzheimer's
      Update
    - 5/19 "Soul Stroll" 
    - 8/29 Four Seasons of
      Health Expo   

- FCA's Fact sheets

- Caregiver Bill of Rights 

 

Research Registry 

Family Caregiver  

  Interviews and Caregiver Tool Testing (Help Shape This Caregiver Tool!)

 

Donor Thank Yous 

 

New Donate Now Btn 2011

Quick Links

 

Caregiver Tool: State-by-State Help 

 

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FCA's new Channel: CAREGIVERdotORG

Newsletter Credits

 

Editors
Michelle Venegas
Paige Harvey  

Production & Graphics
Andrea Orvik
  

Contributors

Sean Coffey
Kathleen Kelly
Lana Sheridan
Tyler Stanley
Paige Harvey
Michelle Venegas

Executive Director
Kathleen A. Kelly

Board of Directors 

 

Directors
Herman S. Brown
Claude Everhart
Moira Fordyce
Ping Hao
Jeff Kumataka
Jacquelyn Kung
Mark Lachman
Michael Malewicz
F. Burns Vick
Debbie Wolter 

 

FROM OUR EXECUTIVE DIRECTOR

California Budget Cuts Kathy K black & white photo

 

By Kathleen Kelly, Executive Director, Family Caregiver Alliance

  

Dear Friend of Family Caregiver Alliance (FCA),

 

In the Governor's proposed 2012-13 budget, funding for California's Caregiver Resource Centers is slated for elimination.  The Bay Area Caregiver Resource Center is a program of Family Caregiver Alliance.

 

We are asking for you to help advocate to sustain the $2.9 million for the CRC's, rejecting the Governor's proposal for elimination. California's 6 million caregivers deserve better.

 

State funding allows us to offer low and no-cost services, providing caregiver information, Family Consultation, respite, counseling, education and training, and legal consultation.    

 

We need your help TODAY! Please do one or more of the following:

 

1. Write a letter and send it to FCA. We will deliver it to your state legislator. Write your own or use our template.

 

2. Sign the petition asking the governor not to balance the budget on the backs of family caregivers.

3. Call, fax or visit your local Senator or Assembly member. Find a listing of Bay Area Legislators on our website or by visiting this website.

4. Ask your friends and family to Write, Sign and Call. Every voice counts!

 

  • Total dollar valuation of unpaid services family caregivers provide in CA: $48 billion.
  • Total current dollar amount of state funds for family caregivers: $2.9 million.
  • Total public investment per 6 million family caregivers in state: .50 cents per caregiver.
  • Total value of family caregivers to their families and society: priceless.

 

The state wants to spend $0 on caregivers; do you really want this to go unchallenged?

 

Thank you for your support of such a vital resource to our communities.  

 

- Kathy Kelly

Executive Director, Family Caregiver Alliance 

 

 

workshopsLEAD ARTICLES
 

Baby Boomers Aware of Aging Parents' Needs, Yet Lack Vital Care Resources and Tools According to a Care.com Survey    

  

With the population of the elderly on the rise, and a lack of preparation, the need for caregiving resources are at an all time high.    

   

[Read the article]   

  


A Low-Cost Solution That Can Improve the Demeanor and Quality of Life for Caregivers

 

Studies have proven that therapy and medications can help with depression and its crippling side effects, but a new study shows that a simple yoga regimen can make an impact as well. A study out of UCLA is now suggesting that the use of yoga, in the form of daily meditation, can lead to reduced levels of depression as well as improve one's cognitive function. 

 

 [Read more] 

  


  

The OTHER Side Of Fifty - California caregivers stressed, in poor health 

 

A study by UCLA's Center for Health Policy Research shows that California's caregivers are more stressed, and have a higher rate of diminished health than the rest of the United State's caregivers. According to the survey, the following things are true of a majority of older caregivers:

 

  • More California caregivers juggle work and caregiving.
  • More California caregivers are under financial stress.

 

 


 

Proposed Budget Cuts Could Affect 12,000 Caregivers Statewide

 

Governor Jerry Brown has proposed a budget cut that will affect nearly 12,000 caregivers in the state of California. How is he cutting the funding and what are the consequences? 

 

   


 

Family. . .

 

Family relations are not always warm, loving, cooperative situations. Often there is friction among family members as changes occur, and in some families the various family members don't even like each other.

 

Role expectations are not clear, or people do not agree about what is expected of each other.

 

Conflicts can develop unless new roles and rules are defined and expectations are clarified within the individual and within the family.

 

 

I will do my best today.

 

Excerpted from "The Gift of Caregiving", Daily inspirations, Affirmations and Tips. Author Rebecca Sharp Colmer, EKLEKTIKA Press, Inc., Chelsea, MI 48118, Copyright 2011, ISBN: 978-0-9823250-2-55




The Power of Song for Those With Alzheimers & Their Caregivers

Many caregivers long for the connections they once had with their loved one/care recipient. That is not out of reach for a group in New York City. Both caregivers and care receivers are bonding in song as a part of the new chorus called "The Unforgettables".

[Read this article]    

 


Help For Being A Family Caregiver 

      

Absolutely the easiest thing for someone to say and the hardest thing to accept is the concept of taking care of yourself as a caregiver. It is often hard to see beyond the care tasks that await you each morning. Here are some areas to consider to help you cope as a caregiver.   

 

 [Read more] 

 

workshopsFCA PRESENTATIONS & WORKSHOPS
(For information on or to register for any event below, call FCA's Education Coordinator at 800-445-8106, ext. 317)

Summer 2012   

  

 

May 9th    

 

"Planning Today For Tomorrow"  

 
 Join us for a workshop that focuses on legal issues facing today's family caregivers. Guest speaker Bruce Feder, an elder law attorney of Kato Feder & Suzuki, will be discussing Medi-Cal eligibility among other things. Please come with your questions and be prepared to gain valuable knowledge.

 View details here   

 

 

2 purple rosesJune 11th & July TBA    

 

"Take Time To Smell The Roses"  

 

Two 1-day retreat designed especially for the caregiver to learn, build connections, and relax. These events will be held at Ardenwood Historic Farm in Fremont and Nestldown in Los Gatos. These days will include breakfast as well as a catered lunch for all attendees. 

View details here

 

 

August 23rd    doctor listening to Qs

 

"What's Up Doc?"  

 
This 1-day workshop explores how to communicate effectively with healthcare professionals.  During this workshop, you will be taught how to use more effective communication techniques with health care professionals, and how to use powerful communication tools and techniques in order to be a better advocate on behalf of your loved one. 

View details here       

FairsEventsCOMMUNITY HEALTH FAIRS &
SPECIAL EVENTS

(FCA will be participating in the following community health fairs and special events. For information on any event below, call FCA's Education Coordinator at 800-445-8106, ext. 317)  

 

Summer Events 

    

 

May 11th

   

"African American Caregiving and Wellness Forum" 

 

This program will be held from 8:30am-2:30pm at the West Oakland Senior Center. Program topics will include healthier eating, advocacy, caregiving resources, Alzheimer's Disease and diabetes. Register for the event here.  

 

May 15th  

  

Aging and Disability Technology Summit 2012 logo 

"Aging and Disability Technology Summit"   

From 8:30am to 5:00pm San Francisco's City Hall will be buzzing with technology and resources for seniors. There will be workshops, interactive demonstrations, large video displays, and so much more. For more information visit the SF Healthy Aging website or e-mail [email protected] or call (415) 355-6775.    

 

May 16th  

 

"Annual Alzheimer's Update"   


This event will be held from 8:00am to 4:00pm at the Crowne Plaza in Foster City, Ca. The event will cover topics such as, research advancements, alternatives to pharmaceuticals, and identify service needs for gay, lesbian, and bisexual communities.
  


May 19thAfrAm CHAC logo

   

"Soul Stroll" 

 

Held at the Coyote Point Park from 9:00am-1:00pm, the event is a screening and resource fair brought to you by the Mills-Peninsula Health Services African American Community Health Advisory Committee.

 

August 29th

   

4 seasons of health logo"Four Seasons of Health Expo" 

 

Located at the Fremont Multiservice Senior Center, this event takes place from 9:00am-1:00pm. This day will include access to many community resources and information for the promotion of wellness in adults 50 and older.

 

For more information, check the City of Fremont website closer to the date.
Caregiving InformationCAREGIVING INFORMATION

 

Fact Sheets:

 

Do you ever find yourself aimlessly searching the internet for tips and facts for both you and the loved one you care for? Often times the results of internet searches can leave you with more questions and concerns then you had before. Before you turn to a search engine, take a look at our many fact sheets. They range in topics from "Caregiving and Depression" to "Dementia and Driving" and so many more! Check back frequently as we will be adding Chinese, Vietnamese, and Korean translations of our most popular fact sheets.

 

Fact Sheets 

 

  


 

Caregiver Support: The Caregiver Bill Of Rights     

For this, and the next four issues, we will list a total of 10 rights that you have as a caregiver caring for you loved one.

 

  

    


Caregiver Bill Of Rights

1. I have the right... to take care of myself. This is not an act of selfishness. It will give me the capability to take better care of my relative.

2. I have the right... to seek help from others even thought my relatives may object. I recognize the limits of my own endurance and strength.

 

donorsRESEARCH REGISTRY
Doctor's clipboard

Family Caregiver Interviews and Caregiver Tool Testing

We know there is often a personal financial burden to care for a loved one. We are developing an online tool to make it easier for primary family caregivers to receive financial support from siblings, relatives and friends.

 

Help shape this caregiver tool!  

 

We seek caregivers who

  • Currently care for a family member, locally or long-distance
  • Coordinate tasks, care or finances with 2+ family members
  • Spend at least $100/month of personal money on care for loved one
  • Use the internet regularly at home
[Read more about the study...] 

 

 

donorsGIFTS FROM THE HEART
heart-shaped money-box with ribbon

A quarterly thank you to our donors and supporters . . .

In every edition of Connections, we take a moment to extend a warm thank you to the many generous supporters who make the work we do possible through thoughtful donations to Family Caregiver Alliance.

   

For over 30 years, Family Caregiver Alliance has offered programs to support and sustain the important work of families and friends caring for loved ones with chronic, disabling health conditions. FCA offers programs at national, state and local levels. The National Center on Caregiving was established at FCA in 2001 to advance the development of high-quality, cost-effective services and policies nationwide. A wealth of caregiving advice, resource listings, newsletters, fact sheets, research reports, policy updates and discussion groups are available free on the FCA website. Visit www.caregiver.org or call (800) 445-8106 for more information.

 

? 2012 Family Caregiver Alliance. All Rights Reserved. No portion of this newsletter may be reproduced without the express permission of Family Caregiver Alliance.

 

 

 

785 Market Street, Ste. 750, San Francisco, CA 94103

www.caregiver.org | 415.434.3388 

 

 

 


 

A Low-Cost Solution That Can Improve the Demeanor and Quality of Life for Caregivers

Studies have proven that therapy and medications can help with depression and its crippling side effects, but a new study shows that a simple yoga regimen can make an impact as well.

The importance of this study will become greater as the current population ages and the number of individuals diagnosed with Alzheimer's increases. As that number rises, so does the number of caregivers, and so does the amount of stress the caregivers are under. Caregivers who are chronically stressed are much more likely to develop feelings of depression and hopelessness. While medication, at times, can help with depression, the possible side effects can decrease quality of life.

The study included 49 family caregivers who are caring for a loved one with dementia. These 49 individuals were divided into two groups, the first was taught a simple, 12-minute practice that included meditation and the second was given a relaxation CD to be listened to in a quiet room. Both of these groups preformed their respective activities at the same time every day for eight weeks.

The end of the eight week study brought the following results; the meditation group was not only showing notably lower levels of depressive symptoms, but also an improvement in their mental health.

Results:

  • 65% of the meditation group showed a 50% improvement with regard to depression
  • 52% of the meditation group showed a 50% improvement in mental health
  • 31% of the relaxation group showed improvement with regard to depression
  • 19% of the relaxation group showed improvement in mental health

To read more about the study, click here.
 

Help for Being a Caregiver

Absolutely the easiest thing for someone to say and the hardest thing to accept is the concept of taking care of yourself as a caregiver. It is often hard to see beyond the care tasks that await you each morning. Here are some areas to consider to help you cope as a caregiver.

  • Education - Learn as much as you can about the illness so that you can understand what is happening. Attend a support group, not just for emotional support but also to learn caregiving tricks to make caregiving easier. You can't know it all; this is a job you weren't trained to do.

  • Support - Support and coping comes in many forms: prayer, talking to family, friends or professionals, saying "yes" to offers of help, taking walks, reading a book, eating hot fudge sundaes. But most caregivers end up withdrawing from friends and family and feeling isolated and like no one understands. Support groups can be an important source of understanding and connection. Attending caregiving classes or workshops can also help you to get the understanding you need.

  • Setting limits - Learn to ask for help. The oft heard statement, "Let me know if there is anything you need," has but one answer—"Yes, I need a meal, I need someone to stay here so I can go out, I need some time by myself, I need flowers, I need help in the garden, I need some groceries." Learn to say "no" to requests that are draining rather than nurturing, such as hosting holiday meals. You can still make choices about your life and what is right for you and you do still have some control.

  • Your Body - It's easier said than done. We all know we need to eat right, exercise and get eight hours of sleep. Not getting enough sleep is a major cause of illness and stress in caregivers. Exhaustion is one of the main complaints, leading to irritability and then inappropriate anger which then leads to more guilt. Talk with your physician about sleep problems, if you are having them, and ask for help if your loved one is having trouble sleeping through the night. Know the limits of your own endurance and strength. Make sure you have regular check ups and that those "little concerns" about your health are looked into. Exercise is even more important as it gives you a break, combats depression and helps you maintain health. One common fear of caregivers is the worry about what will happen to their loved one if something happens to them. Taking care of your body is your best defense.

  • Emotional Health - It is easy to become overwhelmed, thus the need for breaks. One caregiver related that she deals so much better with her husband when he has been at day care, because when he comes home, she is not already frustrated by him. Without breaks, you begin to question yourself, feel inadequate and experience burn out. Caregivers are often mourning the loss of the person "who used to be." Grief and loss needs to be acknowledged. Taking care of yourself may mean dealing with family issues, as caregiving brings one back to family, albeit in a new way.

  • Guilt - Guilt that "I should" do this or be able to do it, guilt that your loved one won't get as good care if you aren't doing it, guilt that something will happen if you are away, guilt about having a good time when someone else is not. Just like in raising a child, there is no such thing as a "perfect" caregiver. And you are not selfish to sometimes think about yourself and your needs and feelings. Although caregivers feel guilty when they get angry or frustrated, feelings are ok and a sign of how you are coping. "How can I say it is difficult when I really love my wife," one husband said.

  • Respite - One caregiver said, "I'm tired of being told to 'take care of myself.'" But without finding ways to do that, it is easy to become overwhelmed. Respite breaks might be lunch with a friend, catching an afternoon movie, or a walk around the block. It is whatever will nourish you and help you to feel refreshed when returning to your caregiving duties.

 


 

Special Thanks to Our Wonderful Donors!

Charitable contributions are a vital part of the community support for Family Caregiver Alliance. We are pleased to list the following donors whose gifts were received from February 1, 2012 through March 31, 2012. We thank our donors for their generosity and community spirit.

A special thank you to:
Leverdia McNeil
     in honor of Verdia Mae Blake
Katharine H. Johnson
William R. Lyman
Janet M. Sheard

Thank you also to the following generous donors:
Maria Abundo
Miren R. Alvarez
Christine D. Arata
Brenda Byes
Diana M. Franco
Muriel K. Fry
W. F. Kirschbaum
Evelyn Owens
Judith Teichman


Gifts were made in honor of:
Fannie Peters
     by Balita A. Shepperson
David Phelps
     by Richard Sintchak

Gifts were made in memory of:
Robert Bardfield
     by Carolyn Hanesworth
Evelyn Louise Costa
     by Debbie Dittman
Art Lepore
     by Donna Gomes Fabiola Trejo


We also wish to thank the following for providing matching funds:
Aetna Foundation, Inc.
National Semiconductor Employee Directed Giving Program

And for sharing a portion of their sales January 4th as part of their "52 weeks of Fundraising":
Paxti's Chicago Pizza, Noe Valley Branch
and their patrons, for their support

Does your employer match charitable donations? Many do, and it's an easy way to increase your charitable giving!

 




  © 2011 Family Caregiver Alliance. All Rights Reserved. No portion of this newsletter may be reproduced without the express permission of Family Caregiver Alliance. 

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