Report of the Special Emphasis Panel on Opportunities and Obstacles to Genetic Research in NHLBI Clinical Studies

The National Heart, Lung, and Blood Institute (NHLBI) has supported and continues to support a broad array of epidemiological and clinical studies that have a large number of stored samples. In order to maximize the public health benefit from these studies the NHLBI convened a Special Emphasis Panel on Wednesday February 5, 1997 in Washington D.C. to discuss the Opportunities and Obstacles to Genetic Research in NHLBI Clinical Studies.

The goals of the Special Emphasis Panel were to:

• Address the critical issues, barriers, and needs to permit optimal use of collected clinical samples,
• Address issues relating to collecting and sharing samples in future NHLBI studies,
• Recommend a comprehensive master plan of activities to facilitate genetic studies in NHLBI clinical research.

The report of the Special Emphasis Panel contains valuable recommendations in the areas of:

1. Disseminating information about genetic studies,
2. Ensuring adequate DNA resources,
3. Facilitating collaboration, and
4. Protecting Human subjects.

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Last Updated April 2011