Children with Special Health Care Needs/Chronic Conditions

News and Numbers

Date	Title
10/12/11	Children's Use of Asthma Controller Drugs Doubles

CHIRI™ Issue Brief No. 9:
Mental Health Needs of Low-Income Children With Special Health Care Needs

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MEPS Reports

MEPS Research Findings, No. 24:
Utilization and Expenditures for Children with Special Health Care Needs

MEPS Statistical Brief, No. 75:
Access to Needed Medical Care Among Children Under 18 Years of Age With Special Health Care Needs, 2002

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Research Findings

Research Activities, October 2012:
Children with juvenile idiopathic arthritis are at high risk of hospital stays that involve bacterial infections
Evidence lacking on best approaches to treat autism in teens and young adults

Research Activities, September 2012:
No link found between stimulant treatment of youth with ADHD and cardiovascular problems
Research Activities, August 2012:
No significant link found between treatments used for juvenile idiopathic arthritis and development of cancer
Research Activities, June 2012:
Supplemental phenylketonuria therapies may help some
Research Activities, May 2012:
Annual screening for malignancy among children with spina bifida with cystoplasty unlikely to be cost effective
Children with special health care needs with disabilities have greater unmet health care needs than those without disabilities
Research Activities, March 2012:
Costs of congenital heart operations vary among hospitals
Bone marrow transplant is beneficial for some rare pediatric conditions
Pediatric nurses express differing perspectives on palliative care
Research Activities, January 2012:
Pediatric cardiology centers vary in treatment of infants with single ventricle congenital heart disease

Research Activities, December 2011:
Most children receiving palliative care live for more than a year after beginning such treatment
Good communication with the doctor treating their child for cancer improves parental satisfaction with their role in decisions
Moving adolescents with sickle cell disease from pediatric to adult care hampered by lack of knowledgeable adult hematologists
Research Activities, September 2011:
Clinicians cautioned about use of antihypertensive in children receiving kidney transplants who take tacrolimus
Research Activities, May 2011:
Surgery and imaging rates for children's kidney stones are stable, but vary greatly from hospital to hospital
Treatments show promise in reducing autism-related behaviors, but some have significant side effects
Research Activities, February 2011:
Telephone coaching improves quality of life for parents of children with asthma

Research Activities, October 2010:
Most spending on children's health care in Medicaid and CHIP goes for children with chronic health problems
Oregon and Vermont show fewest hospitalizations for children with asthma
Research Activities, September 2010:
Public insurance linked to longer perception of disease burden among children with asthma
Physicians report care barriers for young adults with childhood onset chronic diseases
Research Activities, June 2010:
Nearly one-fourth of parents of children with special health care needs have cut back on or quit work to care for them
Research Activities, February 2010:
Children with cerebral palsy who undergo gait assessment before surgery are less likely to need additional surgery later
Youth with HIV/AIDS and conduct disorder are less likely to use or adhere to antiretroviral therapy

Research Activities, December 2009:
New guidelines issued for nephrotic syndrome in children
Research Activities, October 2009:
Factors other than gender are associated with poor growth in urban children
Research Activities, September 2009:
Air leak test does not accurately predict problems after breathing tube removal in children
Research Activities, August 2009:
Study finds high medication error rates among adults and children receiving outpatient cancer treatment

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