We recommend the online support groups and Internet forums below as a patient and caregiver information service.
The American Cancer Society
Site for cancer survivors
http://csn.cancer.org/forum/165
Brain Tumors Support Group
This is a comprehensive brain tumor support site with a find a doctor database and a health insurance function. It also offers videos.
http://www.mdjunction.com/forums/brain-tumors-discussions
CancerCare
A site for caregivers and patients.
http://www.cancercare.org/support_groups/tagged/brain_cancer
CancerCompass: Brain Cancer Discussions
Discussion forums sponsored by Cancer Treatment Centers of America.
http://www.cancercompass.com/message-board/cancers/brain-cancer/1,0,119,5.htm
The Cancer Forums
Discussion groups for all types of cancer, including brain tumors.
http://www.cancerforums.net/forums/32-Brain-Tumors-Forum
Cancer Support Community
A portal to support groups, forums, or to create individual websites.
http://www.cancersupportcommunity.org/MainMenu/Cancer-Support/Online-Support-Groups.html
Caregiver
General site for caregivers of multiple diseases. Already one of our referred sites.
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=347
Children’s Brain Tumor Research Foundation
A forum organized by tumor type, plus a news section.
eHealthForum
This forum offers “Ask a Doctor” questions to be posted and answered.
http://ehealthforum.com/health/forum192.html#b
The Healing Exchange Brain Trust
This nonprofit site was founded by two brain tumor survivors, a neurosurgeon, and a nurse. Groups are divided into tumor types and such areas as caregivers and family members of brain tumor patients.
http://www.braintrust.org/specgroups.htm
Imerman Angels
A site that matches cancer patients with other common-interest cancer patients.
It’s Just Benign
Founded and run by brain stem glioma survivor Beth Rosenthal, this nonprofit site offers online methods to donate to it and is dedicated to survivors of benign brain tumors.
http://www.itsjustbenign.org/forum/topic/listForTag?tag=tumor
Meningioma Mommas
Nonprofit online support group for patients with meningiomas.
http://www.meningiomamommas.org/
Musella Foundation for Brain Tumor Research and Information
Online news, information, and support site.
WebMD
WebMD brain cancer support group.
http://forums.webmd.com/3/brain-cancer/forum/5
The sites below are for teens and young adults.
Group Loop
A site for teens living with cancer
Planet Cancer
A site for young adults living with cancer
Stupid Cancer
A site for young adults living with cancer
Teens Living with Cancer
http://www.teenslivingwithcancer.org/
Young Cancer Spouses
http://www.youngcancerspouses.org/phpbb2/index.php
Young Adult Cancer Canada
http://www.youngadultcancer.ca/Community.asp
NBTS cannot be responsible for content on these sites.
Last Updated August 23, 2012