You can help advance ectodermal dysplasias research. We need every person affected by ectodermal dysplasias throughout the world to complete a profile. Join the Registry today.
Read about amazing families affected by ectodermal dysplasias and how they have overcome adversity.
My Baseball Journey: A Sportscaster's Story
Houston Astros Sportscaster Bill Brown has written a new book that includes a chapter about Zach Hamm, a 12-year-old affected by ectodermal dysplasia.
Halloween Bash
Join the Geismar family in raising awareness and funds for ectodermal dysplasias.
Don't Sweat It Walks
Walk with us to raise awareness and support for ectodermal dysplasias! Find a walk location near you.
Make a Donation
You can make a real difference in the lives of children and adults affected by ectodermal dysplasias by supporting the National Foundation for Ectodermal Dysplasias.
International Ectodermal Dysplasias Organizations
Check out the International Ectodermal Dysplasias Organizations around the globe.
