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Caregiver Supports
- Alzheimer's Association
Contact the Alzheimer's Association 24-hour, toll-free telephone line to link with local chapters and community resources. For family caregiver tips, go to these links:
- Alzheimer's Disease Education and Referral Center (ADEAR)
1-800-438-4380 (English, Spanish). The ADEAR Center is operated as a service of the National Institute on Aging, one of the Federal Government's National Institutes of Health and part of the U.S. Department of Health and Human Services. The ADEAR Center strives to be a current, comprehensive, unbiased source of information about AD.
- Caregiver Resources on the AoA Web Site
This government site is the US Administration on Aging's Caregiver Web portal, with links to organizations, information, and resources about family caregiving.
- Family Caregiver Alliance (FCA)
Links to FCA online support groups and tools for caregiving: Online Caregiver Support Group for families, partners and other caregivers of adults with Alzheimer's, Parkinson's, stroke, brain injury, and other disorders; The Huntington's Disease and Movement Disorders Online Support Group; The LGBT Caring Community Online Support Group for lesbian, gay, bisexual and transgender caregivers; and Link2Care for clients of California's Caregiver Resource Centers.
- Foundation Aiding the Elderly (F.A.T.E.)
A California non-profit organization which seeks to serve as a voice for patients and to bring about national reforms and enforcement of the laws governing the nursing home industry and its regulatory agencies in order to assure proper care, civil rights and meaningful, dignified life for the elderly in long-term care facilities. Among F.A.T.E.'s current goals are: to report abuse and neglect violations to the appropriate authorities and to provide a forum to support legal action on behalf of patients and their families.
- Long-Term Care Ombudsman Program
Long-term care ombudsmen are advocates for residents of nursing homes, board and care homes, assisted living facilities and similar adult care facilities. The Ombudsman Program is established in all states under the Older Americans Act, which is administered by the Administration on Aging, part of the U.S. Department of Health and Human Services.
- National Association of Professional Geriatric Care Managers
A geriatric care manager is a professional who specializes in assisting older people and their families in meeting their long-term care arrangements. GCM's have training in gerontology, social work, nursing, or counseling. This site has a large nationwide searchable directory for finding a care manager. See also links to care management and family caregiver resources.
- National Family Caregivers Association (NFCA)
The NFCA exists to support family caregivers and to speak out publicly for caregivers' needs. The site contains caregiving tips, news and information, and resources for families.
- National Organization For Empowering Caregivers (NOFEC)
NOFEC is a non-profit New York-based organization whose stated mission is to provide assistance, education, support, and referrals for informal family caregivers, as well to promote public awareness about the realities of caregiving. Links to support groups, seminars, counseling, and respite care resources.
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