Data on Health and Well-being of
American Indians, Alaska Natives, and Other Native Americans
Data Catalog

Contents

Acknowledgments

Sections

1. Background
2. Catalog Description
   1. Catalog Organization
   2. Methodology
   3. Using These Data Sources
3. Data Sources by Topical Area
4. Data Sources by Subpopulation Coverage
5. Listing of Data Sources:
   • A Picture of Subsidized Households (1998)
   • Adoption and Foster Care Analysis and Reporting System (AFCARS)
   • American Community Survey (ACS)
   • American Housing Survey (2003)
   • American Housing Survey: Metropolitan Surveys
   • Annual Survey of Jails (ASJ)
   • Behavioral Risk Factor Surveillance System (BRFSS)
   • CAHPS Health Plan Survey Response Data
   • California Health Interview Survey (CHIS)
   • Census 2000
   • Census 2000 — The American Indian and Alaska Native Summary File
   • Census of Agriculture (2002)
   • Census of Jails
   • Census of Tribal Justice Agencies in Indian Country (2002)
   • Consumer Expenditure Surveys (CE) Interview and Diary Surveys
   • Current Population Survey (CPS)
   • Early Childhood Longitudinal Study, Birth Cohort (ECLS-B)
   • Early Childhood Longitudinal Study, Kindergarten Class of 1998-99 (ECLS-K)
   • Food Stamp Quality Control Database (FSPQC)
   • Hawaii Health Survey (HHS)
   • Head Start Program Information Report
   • Health and Retirement Study (HRS)
   • Health Behavior in School-aged Children (HBSC)
   • Health Information National Trends Survey (HINTS)
   • Integrated Postsecondary Education Data System (IPEDS)
   • Medicaid Analytic Extract (MAX)
   • Medical Expenditure Panel Survey (MEPS)
   • Medicare Denominator File
   • Medicare Utilization — Standard Analytic Files (SAFs)
   • National Aging Program Information Systems (NAPIS) State Program Reports
   • National Ambulatory Medical Care Survey (NAMCS)
   • National Assessment of Adult Literacy (NAAL)
   • National Child Abuse and Neglect Data System (NCANDS)
   • National Crime Victimization Survey (NCVS)
   • National Epidemiologic Survey on Alcohol and Related Conditions (NESARC)
   • National Health Interview Survey (NHIS)
   • National Hospital Ambulatory Medical Care Survey (NHAMCS)
   • National Household Education Surveys Program (NHES)
   • National Household Travel Survey (NHTS)
   • National Indian Education Study (NIES)
   • National Longitudinal Mortality Study (NLMS)
   • National Mortality Followback Survey (NMFS)
   • National Survey of America’s Families (NSAF)
   • National Survey of Child and Adolescent Well-being (NSCAW)
   • National Survey of Family Growth (NSFG)
   • National Survey of Veterans (NSV)
   • National Survey on Drug Use and Health (NSDUH)
   • National Vital Statistics System: Linked Birth-Infant Death (NVSS-I)
   • National Vital Statistics System: Mortality (NVSS-M)
   • National Vital Statistics System: Natality (NVSS-N)
   • Panel Study of Income Dynamics (PSID)
   • Pediatric Nutrition Surveillance System (PedNSS)
   • Pregnancy Nutrition Surveillance System (PNSS)
   • Pregnancy Risk Assessment Monitoring System (PRAMS)
   • Resource and Patient Management System (RPMS)
   • Runaway and Homeless Youth Management Information System (RHYMIS)
   • Small Area Income and Poverty Estimates (SAIPE)
   • Surveillance, Epidemiology, and End Results (SEER)
   • Survey of Jails in Indian Country (SJIC)
   • Survey of Program Dynamics (SPD)
   • Temporary Assistance for Needy Families (TANF) and Tribal TANF
   • Tobacco Use Supplement to the Current Population Survey (TUS-CPS)
   • Treatment Episode Data Set (TEDS)
   • Uniform Crime Reports (UCR)
   • United States Renal Data System (USRDS)
   • Washington State Population Survey (WSPS)
   • Youth Gangs in Indian Country
   • Youth Risk Behavior Surveillance System (YRBSS)
6. Other Data Sources
7. Other Reports

Appendices

1. Glossary (in PDF format, 108KB)
2. Data Set Aggregation (in PDF format, 89KB)
3. Review Protocol (in PDF format, 233KB)
4. List of Sponsoring Agencies (in PDF format, 129KB)

Figure and Tables

Figure 1.1 Key Data Catalog Policy Issues

Table 1. Data Sources by Policy Issue
Table 2. Data Sources by Subpopulation Coverage: American Indian/Alaska Native
Table 3. Data Sources by Subpopulation Coverage: Native Hawaiian/Other Pacific Islander

Acknowledgments

This catalog was prepared by staff from Westat, the American Indian Health Research Program of Black Hills State University, and L&M Policy Research, LLC. Peggy Halpern and Alana Landey of the Office of the Assistant Secretary of Planning and Evaluation (ASPE), United States Department of Health and Human Services (DHHS), served as Task Order Officers for this effort and provided input and guidance to the project. Canta Pian, director of the Division of Economic Support for Families in ASPE's Office of Human Services Policy, provided review and comment on this report.

Three members of the DHHS Data Council's Racial and Ethnic Data Working Group-Audrey Burwell, Dale Hitchcock, and Edna Paisano-served on a project workgroup and provided guidance to the project as well as review of this catalog. Several members of an American Indian, Alaska Native, and other Native American workgroup also provided input and review, including David Wong and Ralph Bryan representing the CDC Office of Minority Health and Health Disparities and the IHS Division of Epidemiology and Disease Prevention, David Simmons representing the National Indian Child Welfare Association, and Lisa Oshiro representing the Council for Native Hawaiian Advancement.

We also benefited from input from several external consultants to the project, including Gordon Belcourt, Executive Director of the Montana-Wyoming Tribal Leaders Council; Carole Anne Heart, Executive Director of the Aberdeen Area Tribal Chairmen's Health Board; Jeff Henderson, President of the Black Hills Center for American Indian Health; Lilia Kapunai, Vice President of Council for Native Hawaiian Advancement; and Frank Ryan, independent consultant. Numerous knowledgeable individuals at DHHS and other federal and non-federal organizations gave generously of their time to ensure that we had complete and up-to-date information on existing surveys and databases. We appreciate the careful review of the data catalog and data source profiles conducted by all these individuals.

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Where to?

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Home Pages:
Human Services Policy (HSP)
Assistant Secretary for Planning and Evaluation ASPE)
U.S. Department of Health and Human Services (HHS)

Last updated: 02/28/07