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PrintGenetic Counseling, Support and Advocacy Groups Online
- Clinic Directory
www.ncbi.nlm.nih.gov/sites/GeneTests/clinic?db=GeneTests
Database of genetics clinics, searchable by location, population served and specialty. Hosted by GeneTests/GeneClinics.
- Coalition for Genetic Fairness
www.geneticfairness.org/index.html
Advocacy group for federal legislation regarding genetics discrimination through the National Partnership for Women & Families.
- Family Village
www.familyvillage.wisc.edu/index.html
Disability-related resources
- Find a Genetic Counselor
www.nsgc.org/tabid/68/Default.aspx
A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
- Gene Tests/Gene Clinics
www.ncbi.nlm.nih.gov/sites/GeneTests/?db=GeneTests
Comprehensive information on genetic testing and genetic counseling. Includes Educational Materials:- What is Genetic Testing?
- Who Should Have A Genetics Consultation?
- What is a Genetics Consultation?
- The Genetic Alliance
www.geneticalliance.org
A nonprofit health advocacy organization that transforms health through genetics, promoting an environment of openness centered on the health of individuals, families, and communities.
- Genetic Centers, Clinics and Departments
www.kumc.edu/gec/prof/genecntr.html
Comprehensive resource list for genetic counseling, with links to genetic centers and clinics, associations and university genetics departments. Hosted by the University of Kansas Medical Center.
- Genetics and Rare Conditions Site
www.kumc.edu/gec/support
Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition. Hosted by the University of Kansas Medical Center.
- Mountain States Genetic Network (MoST GeNe)
www.mostgene.org/topics/cclin01.htm
Information on genetic counseling, including:- Indications For Genetic Counseling Referrals.
- What to Expect from a Genetics Consultation.
- National Organization for Rare Disorders
www.rarediseases.org
Wide array of genetic-related information
- Online Genetic Support Group Directory
www.mostgene.org/support/index.htm
Alphabetic index of genetic disorders with links to associations, support groups and disease-related resources. Hosted by the Mountain States Genetic Network (MoSt).
Last Updated: March 14, 2012
