What is GINA? How will it affect me? How will I - and my family - be protected? NHGRI Acting Director Alan Guttmacher, NHGRI Senior Health Policy Analyst M.K. Holohan and President and CEO of the Genetic Alliance Sharon Terry discussed these GINA topics and more on July 17, 2008 at 1 p.m. Eastern.

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GINA: Related Resources

• Genetic Information Nondiscrimination Act of 2008 Fact Sheet
• Overview of the law's timeline
• Full text of the bill: H.R. 493 [thomas.loc.gov]
• GINA: Keeping Pace with the Times [content.nejm.org]
  From the New England Journal of Medicine

Alan Guttmacher, M.D., is the Deputy Director of the National Human Genome Research Institute (NHGRI), helping oversee the institute's efforts in advancing genome research, integrating the benefits of genome research into health care, and exploring the ethical, legal, and social implications of human genomics. Dr. Guttmacher also serves as the Director of the Office of Policy, Communications, and Education at the NHGRI. In that role, he directs the institute's health affairs, public policy, communications, community outreach and public education functions.

M.K. Holohan is a Senior Health Policy Analyst at the National Human Genome Research Institute at the National Institutes of Health. Her primary focus is on legislation and government relations, and policy issues related to genetic information, including nondiscrimination issues, regulation and privacy considerations. Prior to joining the NIH, Ms. Holohan worked as an attorney in a litigation practice, and also has extensive experience in clinical research in oncology and HIV/AIDS.

Sharon Terry is President and CEO of the Genetic Alliance, a network transforming health by promoting an environment of openness centered on the health of individuals, families and communities. She is the founding Executive Director of PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE).

For more information on the Genetic Alliance, please visit www.geneticalliance.org