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PrintBarbara Bowles Biesecker, Ph.D.
Associate Investigator, Social and Behavioral Research Branch
Head, Genetic Services Research Unit
Director, JHU/NHGRI Genetic Counseling Training Program
Selected Publications
Redlinger-Grosse, K., Bernhardt, B., Berg, K., Muenke, M., Biesecker, B.B. The decision to continue: the experiences and needs of parents who receive a prenatal diagnosis of holoprosencephaly. Am J Med Genet, 112(4):369-78. 2002. [PubMed]
Peters, K.F., Kong, F., Hanslo, M., Biesecker, B.B. Living with Marfan syndrome III: quality of life and reproductive planning. Clin Genet, 62:110-120. 2002. [PubMed]
Gollust, S., Thompson, R., Gooding, H., Biesecker, B. Living with achondroplasia in an average-sized world: an assessment of quality of life. Am J Med Genet, 120A(4):447-58. 2003. [PubMed]
Biesecker, B., Peay, H. Ethical Issues in Psychiatric Genetics Research: Points to Consider. J Clin Psychopharmacology, 171(1):27-35. 2003. [PubMed]
Gollust, S.E., Thompson, R.E., Gooding, H.C., Biesecker, B.B. Living with achondroplasia: attitudes toward population screening and correlation with quality of life. Prenat Diagn 12:1003-1008. 2003. [PubMed]
Gollust, S.E., Thompson, R.E., Gooding, H.C, Biesecker, B.B. Living with achondroplasia in an average-sized world: an assessment of quality of life. Am J Med Genet, 120:447-458. 2003. [PubMed]
McInerney-Leo, A., Biesecker, B.B., Hadley, D.W., Kase, R.G., Giambarresi, T.R., Johnson, E., Lerman, C., Struewing, J.P. BRCA 1/2 testing in hereditary breast and ovarian cancer families: effectiveness of problem-solving training as a counseling intervention. Am J Med Genet, 130:221-227. 2004. [PubMed]
Gollust, S., Apse, K., Fuller, B., Miller, P.S., Biesecker, B.B. Community involvement in policy-making for genetic tests: assessing the interests and experiences of affected individuals. Am J Public Health, (1):35-41. 2005. [PubMed]
Gooding, H., Organista, K., Burak, J., Biesecker, B. Genetic Susceptibility Testing from a Stress and Coping Perspective. Soc Sci Med, 62(8):1880-1890. 2006. [PubMed]
Sutton, E., Young, J., McInerney-Leo, A., Bondy, C., Gollust, S., Biesecker, B. Truth Telling and Turner Syndrome: The Impact of Diagnostic Disclosure. J Pediatr, 148(1):102-107. 2006. [PubMed]
Resta, R., Biesecker, B., Bennett, R., Blum, S., Estabrooks Hahn, S., Strecker, M., Williams, J. A New Definition of Genetic Counseling: The National Society of Genetic Counselors' Task Force Report. J Genet Couns, 15(2):77-83. 2006. [PubMed]
Lipinski, S. Lipinski, M., Biesecker, L.G., Biesecker, B. Uncertainty and Perceived Personal Control Among Parents of Children with Rare Chromosome Conditions: The Role of Genetic Counseling. Am J Med Genet C Semin Med Genet, 142(4):232-240. 2006. [Full Text] 
Sutton, E., Rosapep, L., Truit, M., Ball, K., Biesecker, B., Guidotti, R., McLean, D. Through the Viewfinder: Positive Exposure a Year Later. Am J Med Genet C Semin Med Genet, 142(4):260-268. 2006. [Full Text]
McInerney-Leo, A., Biesecker, B., Hadley, D., Kase, R.G., Giambarresi, T.R., Strewing, J.P., Biesecker, B.B. BRCA1/2 Testing in Hereditary Breast and Ovarian Cancer Families III: Risk Perception and Screening. Am J Med Genet Part A, 140(20): 2196-2206. 2006. [PubMed]
Gooding, H., Pastrovich, E., Roberts, J.S., Biesecker, B.: Genetic Susceptibility Testing for Alzheimer Disease: Motivation to Obtain Information and Control as Precursors to Coping with Increased Risk. Patient Educ Couns, 64(1-3):259-267. 2006. [PubMed]
Turner J, Biesecker B, Leib J, Biesecker L, Peters, K: Parenting Children with Proteus Syndrome: Experiences with and Adaptation to Courtesy Stigma. Am J Med Genet Part A, 15;143:2089-2097. 2007. [PubMed]
Loewenstein J, Sutton E, Guidotti R, Shapiro K, Ball K, McLean D, Biesecker B: The art of coping with a craniofacial difference: helping others through "Positive Exposure." Am J Med Genet Part A, 146A:1547-1557. 2008. [PubMed]
Peay H, Hooker G, Kassem L, Biesecker B: Family Risk and Related Education and Counseling Needs: Perceptions of Adults with Bipolar Disorder and Siblings of Adults with Bipolar Disorder. Am J Med Genet Part A, 149A(3):364-371. 2009. [PubMed]
Sapp JC, Hull SC, Duffer S, Zornetzer S, Sutton E, Marteau T, Biesecker B: Ambivalence: a qualitative study of women deciding about amniocentesis. Prenatal Diag, 30(1):77-82. 2009. [PubMed]
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Last Reviewed: January 10, 2012
