The Hydrocephalus Association Mission:

From The Blog

“Fall back” isn’t the way to start off this season!

by Dawn Mancuso, CEO

As September comes to a close, and we all start thinking about what fall will bring, we often talk about the cooler temperatures, the changing color of the leaves on the trees, the children going back to school, and the shortening number of daylight hours.

This year, we hope you also thought of Hydrocephalus Awareness Month, or HAM as we’ve been affectionately calling it in our offices. The goal of Hydrocephalus Awareness Month is to bring attention to and understanding about the condition of hydrocephalus among a number of key target audiences, such as public policy makers who have an impact on the amount of public funding available for research; the medical and scientific communities who actually dedicate their lives to treating patients and conducting research; and advocates like you and me who can be motivated to share patient stories and experiences with the media, community leaders and others. (more…)

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What Do We Want? A CURE! When Do We Want It? NOW!

September was Hydrocephalus Awareness Month, a special time to raise awareness nationwide as many eyes turn to our cause as it receives some higher attention nationally. However, we should see every month of the year as our opportunity to raise awareness about hydrocephalus and the one million people living with this condition in the United States today. The current election cycle is an excellent opportunity to raise our voices in the media and, once again, in Congress to make sure that elected officials and candidates alike know we are here and that we have a powerful reason to be heard. Let’s continue educating both the current and possible future politicians about hydrocephalus, reminding them that voting constituents in their areas are affected by this condition. (more…)

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HA Advisor Receives Prestigious MacArthur Award

HA would like extend a hearty congratulations to Dr. Benjamin Warf, associate professor of surgery at Harvard Medical School and director of the Neonatal and Congenital Anomaly Neurosurgery Program at Children’s Hospital Boston, for being named a 2012 MacArthur Foundation Fellow by the John D. and Catherine T. MacArthur Foundation. The fellowship rewards individuals for their “extraordinary originality and dedication” to their field of work. In this case, Dr. Warf is recognized for his outstanding work developing new treatments for hydrocephalus while living in Uganda. (more…)

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Hydrocephalus Association Launches Spanish-language Pages on Hydrocephalus

Hydrocephalus Association launches Spanish-language pages on hydrocephalus

The Hydrocephalus Association proudly announces the launch of our Spanish-language information pages on hydrocephalus. Our launch falls at the midpoint of Hispanic Heritage month (mid-September through mid-October) as well as serves as a celebratory ending to September’s Hydrocephalus Awareness month. (more…)

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