In what many scientists say is a revolution in biology, a giant new project is rewriting our understanding not only of what causes diseases or what makes our eyes a certain color, but what makes us human. And it turns out scientists have been looking in the wrong place for a very long time.
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Make a Gift to Make a Difference
Make a gift today to the Scleroderma Research Foundation (SRF), the nation’s leading nonprofit investor in medical research to find improved therapies and a cure for scleroderma.
Our progress is entirely dependent upon charitable gifts from generous people like you.
Other Ways to Give
There are many ways to support the work of the SRF. From financial contributions to volunteering, there is something everyone can do to help in the fight against scleroderma.
Building Your Philanthropic Legacy
Including the Scleroderma Research Foundation in your estate planning guarantees your lifetime commitment to finding a cure will not end!
The SRF: A Four Star Charity
The SRF has achieved the highest possible rating from Charity Navigator, America's premier charity evaluator, for sound fiscal management and commitment to accountability and transparency. We are honored to be included in this short list of America's most respected and mission-driven nonprofit organizations. -
downloads
SRF 2011
Annual Report:
Research is the Key (4 MB PDF file)The Scleroderma Research Foundation’s 2011 Annual Report is available for download. Read about currently funded research projects and this year's accomplishments.
SRF Live Webinar Series:Visit our webinar page to register for upcoming live webinars and to download recent webinars from leading experts. The SRF webinar series is free and features the latest advances in scleroderma research as well as important news about clinical trials and the ongoing search for improved therapies and a cure.
Moving Forward:
The Work of Scleroderma Research Foundation"Moving Forward" is a six minute video sharing the struggles presented by scleroderma, the bravery of patients living with the disease and the important role of medical research in the search for a cure.
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Cure Crew
Cure Crew is the SRF volunteer program allowing people everywhere to turn their passion into a cure for scleroderma. Learn more about what people are doing to help raise funds and awareness...
Set up your personal Cure Crew page and help find a cure for scleroderma.
Cure Crew members can easily set up a personal page with fundraising goal and simple links to share with friends and family. Tell your story and make a difference in the lives of people living with scleroderma. Best of all, the SRF is here to help. Just call us at 1-800-441-CURE or join online now to get started.
Cure Crew member Meredith Allister and her daughter, scleroderma patient Andrea Oakland, have teamed up to create a children's book to raise awareness and help familes better understand the disease. Support them and the search for a cure - order your copy here. -
featured news
September-2012July-2012FibroGen, Inc., today announced that FG-3019, the Company’s human monoclonal antibody against connective tissue growth factor (CTGF), has been granted Orphan Drug Designation by the U.S. Food and Drug Administration (FDA) for the treatment of idiopathic pulmonary fibrosis (IPF).July-2012The Food and Drug Administration Safety and Innovation Act (FDASIA) includes the most groundbreaking measures for rare disease patients and their families since the Orphan Drug Act of 1983.July-2012The National Institutes of Health announced a total of $275 million in funding for two new research programs—one focused on undiagnosed rare disease and the other on the role RNA outside of a cell plays in cellular communication.June-2012In a clinical trial, no one likes to be given the placebo. Research has shown again and again that many people who participate in clinical trials for new drugs, medical devices or procedures incorrectly assume that the aim of the study is to help the volunteers get better, a fallacy often called the "therapeutic misconception."May-2012Researchers at the University of Pittsburgh School of Medicine have identified an agent that in lab tests protected the skin and lungs from fibrosis, a process that can ultimately end in organ failure and even death because the damaged tissue becomes scarred and can no longer function properly. The findings were published today in Science Translational Medicine.May-2012African Americans have more severe complications from systemic sclerosis, also known as scleroderma, than Caucasians. Findings published today in, Arthritis & Rheumatism, a journal of the American College of Rheumatology (ACR), show that compared with Caucasians, African-American patients were more likely to have antibodies that increased frequency and severity of pulmonary fibrosis, which is associated with decreased survival.September-2010This study was undertaken to examine the temporal relationship between scleroderma development and malignancy, and to evaluate whether this differs by autoantibody status among affected patients. Methods. Study participants had a diagnosis of scleroderma, a diagnosis of cancer, cancer, an available serum sample, and a cancer pathology specimen.March-2012Pain—it’s something we’ve all experienced. From our first skinned knee to the headaches, back pain and creaky joints as we age, pain is something we encounter many times. Most pain is acute and goes away quickly.March-2012A genetic pathway previously known for its role in embryonic development and cancer has been identified as a target for systemic sclerosis, or scleroderma, therapy. The finding, discovered by a cross-disciplinary team led by John Varga, MD,...February-2012When Patti Substelny of Cleveland, Ohio, turned 40, she found herself in a place that many people with autoimmune disorders are familiar with: Her life with a chronic illness looks nothing like what she planned when she was younger.December-2011The ACR video series highlights the experiences of people with rheumatic diseases and the rheumatologists who treat those diseases.
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The Scleroderma Research Foundation is a 501(c)3 nonprofit organization whose mission is to fund and facilitate the most promising medical research aimed at improved therapies and, ultimately, a cure for scleroderma. Information provided by the SRF should not be considered medical advice, nor is it intended to replace consultation with a qualified physician. The SRF does not evaluate, endorse or recommend any particular medications, products, equipment or treatments. Scleroderma varies substantially from one patient to another, and treatment must be tailored by a physician for each individual case. |
