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Share your story

Women all across the country are affected by HIV/AIDS. Some women are living with HIV while holding down jobs and taking care of families. Other women are caregivers to family members or friends with HIV. Here, you can read some of their stories or share your own.

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Community stories

Please note: Posted stories do not necessarily represent the views of womenshealth.gov. Please view our user submitted content policy.

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Jess from Texas (United States)
May 17, 2012 10:40 p.m.
I first found out my husband was postive when I was 20 weeks pregnant. My heart drop to the floor I was worried about my baby I didn't want her to have it. The thought of my baby being born with HIV was devastating. My husband already knew he had it 2 weeks before I found out, he had told me he was scared to tell me didn't know how to tell me. I had found his medication and wanted to see what they were since I never seen those names before. Sure enough soon as I seen HIV I froze didn't know what to do. I confronted my husband all he could say he was very sorry he didn't know from who he got it. All we knew he was getting sick and losing weight all the signs thought nothing of it. I tested every month of my pregnancy after that I came out negative every time. Once our daughter was born she too was tested and then 2 times after that and negative as well. I love my husband very much i am still with him but there is always that thought what if I get it.
Natty from Trinidad and Tobago
May 11, 2012 8:49 a.m.
hi, found out my ex boyfriend had hiv, although we have not been together for the past two years and i tested negative five months ago, i'm still scared. still feel as though i'm experiencing symptoms. they told me i don't have it but i'm scared to get retested. really need some help.
Anonymous
April 30, 2012 8:33 a.m.
I have just tested positive for HIV some hours ago. My world is crashing down and my future looks blank to me. I feel I deserve it because of my foolishness but I feel the guilt of having infected my fiance will kill me. We were supposed to get married soon. I can't forgive myself for what have done to myself and my loved ones. I'm dying silently. I'm just 23 and carrying this heavy burden. I need help.
Frorence from California (United States)
April 27, 2012 6:28 p.m.
I am 25 years old, and am HIV positive. This makes me crazy and I even tried to kill myself because I don't understand. I had a high fever last August that put me in the hospital, and that’s when I learned I have HIV. I was shocked. My boyfriend and I had gotten HIV tests four years earlier and they were negative. We broke up after that, but we got re-tested and were still HIV negative. I was never with another man. We got married in December 2010. But now I am divorced and HIV positive and my husband is still negative. I have no children and I feel hopeless that I will never get my husband back again. I am really hopeless and feel like this is the end of my life because this is so painful, thanks, please help me!

Reply from womenshealth.gov:

Many women struggle with feelings like you describe. But it’s really important that if you are thinking about hurting or even killing yourself, you must call 911. You can also call the National Suicide Prevention Lifeline at 800-273-8255 or the National Hopeline Network at 800-784-2433 for free at any time to talk to someone.

You can get help from a local AIDS group. A case manager will give you confidential help to find out about and receive HIV/AIDS services.

Go to this list, find the state where you live, and call that number for help: http://hab.hrsa.gov/gethelp/statehotlines.html.

When you are connected to local HIV services, you can learn more about living with HIV/AIDS at http://womenshealth.gov/hiv-aids/living-with-hiv-aids/.

Thanks to treatment, many people with HIV are living long lives. You can also get help by calling CDC-INFO at 800-232-4636.

Please note: This response was posted here because the individual’s email address did not work and we wanted to be sure the individual got this important information. Please do not post questions in this section because we are unable to answer them here.

If you are thinking of hurting yourself, please visit or call the National Suicide Prevention Lifeline at 800-273-8255 or 911 right away.
Kylee from Florida (United States)
March 29, 2012 2:28 p.m.
when i was 14 i went on facebook and i got a message from this boy telling me he thought i was very pretty and we began to talk. i then asked how old he was, he told me he was 18. even though it was stupid of me, i still continued to talk to him but really just as friends. he told me he liked me alot and we started going out. our relationship pretty much started out of nothing. one day he asked if we could hang out and i said that would be fun. when i went to his house we began to watch tv but ended up having sex; he took my virginity. i found out from a friend a few days later that this guy was actually 21. i was beyond embarrased and devastated so i didn't tell her we had sex. i have been having symptoms i find to be unexplainable like dry skin and memory loss. i looked up signs of hiv and i had many of them. i dont know what to do or who to talk to. any advice would really help.
Danielle from Texas (United States)
March 29, 2012 1:56 p.m.
I was born in 1985 and diagnosed with "AIDS" in 1991 when I was only 6 years old. My parents apparently did not know their status until 1991 when my father was tested and mother and I right after. I was born with HIV but because my mother was not tested in 1985 or before whenever she contracted it from my father so no one knew. My mother died in 1992 followed by my father in 1995. I am now 27 years old and healthy with a 2 year old son who is HIV negative. I have had my ups and downs related to HIV living but that was then in the 1990s, you know, ignorant people. I am inspired by Ryan White, I'd wish he wouldn't have died to meet him. I was only 5 years old when he passed away. Overall, I am still here, fighting, and being strong. Thank you.
Tgal from South Carolina (United States)
March 21, 2012 1:00 a.m.
I am 30 and been dating my hubby for 2 years and we went for a blood test his is Positive mine is negative, but we've been on an unprotected sex for 2 years,but for that 2 years his been not sperming on me, when we found out that he is positive we decided to use protection and unfortunately one day the condom burst he sperm on me for the first time. I'm scared and afraid to go and test again because I know I might be positive now maybe previously I was not infected because he was not sperming on me. Please help. Am I right or wrong.
Rachel from Virginia (United States)
March 11, 2012 11:18 p.m.
Anytime we sleep with sometime and use unprotected sex we have to get tested and know our status before we move on to the next partner. If you are in a relationship and you are cheating on your partner you are putting them at risk.
Mary from Florida (United States)
March 2, 2012 10:15 p.m.
Hi,
I am 30 about 3 years ago I married the man of my dreams. About 3 months before we got married we took a HIV test his was positive mine was negative. I loved him so we got married anyway. About a year ago he passed away not from HIV but a heart attack. He has never told his family the only person to know was me. Now he is gone and I have not been tested and am so afraid because the one person I knew who would support me is no longer here. I want to get tested but know if I get the results that I am positive that I can't live knowing and would kill myself. For the past year that he has been gone all I can do is cry and wonder if I am positive or negative. I sit and wonder why me and why did I have to lose the only person who understands and if I am positive who will be there to take care of my kids because I can't live knowing I am infected.
Floe from Zambia
February 16, 2012 8:46 a.m.
i am 28, i am dating a married man, i have tested positive to hiv. i confronted him he denied knowing that he was positive but still apologised. last week he left me in his car and i found triomune tablets in his car but he still insists he doesnt know who they are for but says they are for his wife. i am very depressed as i feel he has intentionally infected me with this deadly hiv. i am having sleepless nights thinkng whether i should make it a criminal case, but i fear the media, the stigma attached to this and all sorts, my other fear is that he has money and can bribe the courts in zimbabwe what can i do.
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Content last updated May 17, 2012.

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