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Association for Glycogen Storage Disease - AGSD

Organization URL(s)

maryc@agsdus.org
www.agsdus.org  

Other Contact Information

P.O. Box 896
Durant, IA 52747

563-514-4022 (Voice)
563-514-4022 (FAX)

Description

The Association for Glycogen Storage Disease (AGSD) is a nonprofit support group, established in 1979, for families and persons affected by glycogen storage disease (GSD). AGSD was organized to promote and protect the interests of all persons affected by GSD; to coordinate scientific, educational, and charitable activities related to GSD; to act as a clearinghouse on GSD-related matters; and to publish and distribute material to doctors and other interested persons. AGSD holds a yearly conference focusing on the latest research, care, and treatments available to affected persons.

Print Resources

AGSD publishes a handbook about glycogen storage disease. The handbook may be purchased on line at http://www.agsdus.org/html/agsdstore.html.

Related Topics

Topic Endocrine Diseases Glycogen Storage Disease Metabolic Disorders Pompe's Disease Referral Services Genetic Disorders

Review Date

Fri Jan 6, 2012