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International Alliance of ALS/MND Associations

Organization URL(s)

alliance@alsmndalliance.org
www.alsmndalliance.org/  External Link

Other Contact Information

P.O. Box 246

Northampton , NM1 2PR

+44 1604 611821 (Voice)
+44 1604 624726 (FAX)

Description

The International Alliance of ALS/MND Associations was founded in November 1992 to provide a forum for support and the exchange of information between the worldwide associations. More than 50 national patient support and advocacy groups from over 40 countries worldwide have joined together to form the International Alliance. The Alliance functions primarily as a forum for the exchange of information on all aspects of the disease, research and management of care as well as the provision of support through networking and sharing the development of ideas on good practice. Its developing role is the advancement of the patients' views in discussions affecting the well-being of people with ALS/MND. As part of this activity, Alliance members host the annual International Symposium on ALS/MND, which is the pre-eminent event bringing together leading researchers and health care professionals worldwide to present and debate key innovations in their fields.

Related Topics

Review Date

Wed Jun 1, 2011