FYI from the NHLBI Index

September 2006: Vol. 7, Issue 2
Constituents' Corner

New Consumer Publication Available

National RLS Foundation Meeting

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New Consumer Publication Available

From Foundation for Sarcoidosis Research

The Foundation for Sarcoidosis Research (FSR) unveiled a new consumer publication at the American Thoracic Society meeting that was held in San Diego in May.  “Sarcoidosis and the Heart” was produced by FSR to educate patients and their health care providers about the symptoms of cardiac sarcoidosis as well as current diagnostic tools and treatment options.  Single copies are available free by calling 866-358-KISS or visiting the FSR web site at www.stopsarcoidosis.org.

Sarcoidosis is an inflammatory disease that most commonly affects the lungs, but the disease can also damage the heart, a condition called cardiac sarcoidosis.  Researchers who study sarcoidosis estimate that cardiac sarcoidosis affects more than 10 percent of people who have sarcoidosis in the United States, and perhaps as many as 25 percent.  For this reason, and because heart problems are serious and should be diagnosed and treated as early as possible, people who have sarcoidosis should discuss being screened for cardiac sarcoidosis with their doctors.

FSR also used May as an opportunity to promote another 2006 publication focused on inflammatory disease and bone loss.  “SOS: Your Bones Need Your Help” is designed to educate patients with inflammatory diseases and their health care providers about the consequences of long-term glucocorticoid use, the standard treatment for many inflammatory diseases.  It was produced with an unrestricted education grant from the Illinois Department of Public Health Office of Women's Health.  Single copies may be obtained free from FSR by calling 866-358-KISS or through the web site at www.stopsarcoidosis.org.

Submitted by Debbie Durrer, Foundation for Sarcoidosis Research

National RLS Foundation Meeting

From Restless Legs Syndrome Foundation

The Restless Legs Syndrome (RLS) Foundation will hold its 4th Annual National Meeting on Friday and Saturday, November 17 and 18, 2006, at the Hyatt Regency on the River Walk in San Antonio, Texas.  The meeting will feature several leading experts who will address the latest research advances and treatment recommendations for RLS.  Meeting topics will include epidemiology, genetics, pathophysiology, treatment, children and RLS, coping with RLS, complementary therapy, and roundtable discussions.  The meeting provides participants with the unique opportunity to meet RLS experts, learn more about RLS treatments and research, get tips for managing RLS, and share experiences with others.  For more information, visit www.rls.org.

Submitted by Beth Osowski, Restless Legs Syndrome Foundation

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