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BIAA HOME : LIVING WITH BRAIN INJURY : DIAGNOSIS

Diagnosing Brain Injury

Symptoms
How Can I Tell?
Neuropsychological Assessment
Severe Brain Injury & Coma

Symptoms

A person with a suspected brain injury should call 911, go to the emergency room or contact a physician immediately. After an impact to the head, a person with a brain injury can experience a variety of symptoms. Common symptoms of a traumatic brain injury can include but are not limited to:

  • Spinal fluid (thin water-looking liquid) coming out of the ears or nose
  • Loss of consciousness; however, loss of consciousness may not occur in some concussion cases
  • Dilated (the black center of the eye is large and does not get smaller in light)or unequal size of pupils
  • Vision changes (blurred vision or seeing double, not able to tolerate bright light, loss of eye movement, blindness)
  • Dizziness, balance problems
  • Respiratory failure (not breathing)
  • Coma (not alert and unable to respond to others) or semicomatose state
  • Paralysis, difficulty moving body parts, weakness, poor coordination
  • Slow pulse
  • Slow breathing rate, with an increase in blood pressure
  • Vomiting
  • Lethargy (sluggish, sleepy, gets tired easily)
  • Headache
    Confusion
  • Ringing in the ears, or changes in ability to hear
  • Difficulty with thinking skills (difficulty “thinking straight”, memory problems, poor judgment, poor attention span, a slowed thought processing speed)
  • Inappropriate emotional responses (irritability, easily frustrated, inappropriate crying or laughing)
  • Difficulty speaking, slurred speech, difficulty swallowing
  • Body numbness or tingling
  • Loss of bowel control or bladder control

This information is not intended to be a substitute for medical advice or examination. A person with a suspected brain injury should call 911, go to the emergency room or contact a physician immediately.

How Can I Tell?

If the injury is more severe, it is usually clear from the symptoms that are present that some type of brain injury has occured. If the injury is milder (milder from a trauma standpoint, not a consequence standpoint), further assessment is needed to diagnose the brain injury. Additional information about mild brain injury is available on our mild brain injury page.

Imaging technology can help assess the severity, location and type of injury to the brain.

Computed Tomography (CT)
CT scans are more widely available and are typically the first scan taken. CT scans are generally are not as sensitive as MRIs, but they take less time to complete and have fewer potential complications.

image of CT scan of brain

Magnetic Resonance Imaging (MRI)
MRIs use a magnetic field to scan the brain. They are more sensitive than CT scans but take longer, have more restrictions and cost more. MRIs are not normally done in the acute care phase of a brain injury.

image of Magnetic Resonance Imaging of brain

Other Imaging Technologies
There are more advanced neuroimaging technologies, but they tend to not be considered "standard medical care" and are not as widely available.  Other types of imaging technologies include Funtional MRI (fMRI), Diffuse Tensor Imaging (DTI), Single Photon Emission Computed Tomograhy (SPECT) and Posistron Emission Tomograhy (PET).  Additional information about these scans can be found:

Functional MRI Information
SPECT Scans
Diffuse Tensor Imaging
PET Scan

Neuropsychological Assessment

The neuropsychological assessment is a specialized task-oriented evaluation of human brain-behavior relationships. It relies upon the use of standardized testing methods to evaluate higher cognitive functioning as well as basic sensory-motor processes.

It is appropriate for both a neurologist and a neuropsychologist to perform evaluations and there are some similarities to the kind of testing they do; however, the neuropsychological assessment is designed to provide more detailed and comprehensive information about cognitive capabilities than the neurological evaluation. A neuropsychologist is a psychologist with specialized training in brain-behavior relationships, and instead of being a medical doctor (MD), the academic credentials for a neuropsychologist will likely be PhD or PsyD.

The neuropsychologist will review the case history, hospital records and interview the individual and his/her family; or, in other words, acquire information about the “person” the individual was before the injury (i.e., school performance, habits, and lifestyle). If the evaluation is performed while the individual is in an active rehabilitation program it is used as a basis for formation of a treatment plan implemented by the therapists and others working in one-on-one or group settings with the individual.

What Is Learned from this Assessment?
The assessment is comprised of a wide range of psychological tests that objectively measure brain functions. Ideally, the assessment should be done by a board-certified neuropsychologist, not a technician, as interview and observation provides important information used in interpreting the results. Testing includes a variety of different methods for evaluating attention span, orientation, memory, concentration, language (receptive and expressive), new learning, mathematical reasoning, spatial perception, abstract and organizational thinking, problem solving, social judgment, motor abilities, sensory awareness and emotional characteristics and general psychological adjustment.

Possibly the most important outcome of this testing is the interpretation of the results which are used not only as the basis of the treatment plan for therapists but even more importantly for the individual with brain injury and his/her family. Once the neuropsychologist has completed the scoring and the narrative portion of the assessment, a meeting should be scheduled with the individual and his/her family to discuss the findings. It is helpful to ask that the conference be recorded or bring a tape recorder with you. Taping the conference can be very valuable for other members of the family unable to attend the conference. A hard copy of the evaluation should be provided as well.

The neuropsychologist should explain, in detail, the individual’s abilities that remain unchanged as well as areas of the brain that are adversely affected by the injury and how these deficits are expected to impact the individual’s life. It is helpful for the neuropsychologist to be very clear and informative about ways the injury will affect the day-to-day existence of the individual (e.g., “damage to the frontal lobes of the brain is expected to create difficulties in planning and organizing tasks, use of good judgment, and insight into his/her own situation” or “damage in the right temporal area of the brain may impact on the individual’s musical appreciation or rhythm”). This important information can help the family more effectively guide and support the individual and assist with activities that utilize the preserved abilities and reinforce strategies that compensate for deficits.

To be most effective, the rehabilitation plan should be based on the results of the neuropsychological assessment. Ideally, the plan should be implemented by therapists, such as a day treatment program, residential programs and/or outpatient services and the family needs information about their role in supporting and reinforcing the rehabilitation goals when the individual is in the home or community. Knowing your family member’s deficits can increase your effectiveness as a caregiver and decrease the discord that often develops when the family is not aware of ways the injury has affected the cognitive abilities of a family member.

An assessment can be a costly procedure. Some comprehensive major medical policies do not cover these services. Managed care plans often require use of providers on the plan that may not include neuropsychologists experienced in brain injury. It may be possible to arrange this type of evaluation through appealing the decision of the insurance company with the assistance of your state Insurance Commission Office. Other possible resources include state provided services such as vocational rehabilitation, programs that fund individuals with specific disabilities and community mental health agencies. Children in the public school system are periodically evaluated by school psychologists to develop their individual education plans (IEP), but they may not be as experienced in acquired brain injury as is desirable. Universities offering programs in neuropsychology often provide evaluations at low cost or sliding scale as part of their student training; however, state agencies and universities are often less willing to share the results of the evaluation with families than neuropsychologists in the private sector.

In summary, the neuropsychological assessment is a key piece of the puzzle that explains how damage in the brain affects the way an individual with brain injury thinks, acts and deals with life in general. This information must be known by all who know and love the individual to ensure that life after brain injury, although never the same, is worth living.

Source: Carolyn Rocchio, "Family News and Views" published in TBI Challenge 1999.

Severe Brain Injury and Coma

Coping with severe brain injury is very difficult for family members and friends.  The terms used can be confusing, and the doctors are often very cautious in their prognosis.  The Brain Injury Association developed a booklet to help families understand some of the issues. Read our Severe Brain Injury booklet and call the National Brain Injury Information Center at 1-800-444-6443 for more information.  The National Institute of Neurological Disorders and Stroke also offers an informational page on coma.

 
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BRAIN INJURY ASSOCIATION OF AMERICA
1608 Spring Hill Road, Suite 110 • Vienna, VA 22182 • Phone: 703-761-0750 • Fax: 703-761-0755
National Brain Injury Information Center (Brain Injury Information Only) 1-800-444-6443

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