Faces of FD  logo
 
Dysautonomia Foundation, Inc.
 
Home      About FD       Donate      About Us      News       Events

dna Research Conference
dna FD Gene
Photos
Videos
Benefit Concert
FD Cycle Tour
FD Day
2012
 
 
 
Follow us on

 
Contact Us

  
  Familial Dysautonomia (FD)
 

  A disease most people have never heard of . . .

Familial Dysautonomia (FD) is a rare genetic neurological condition that affects the sensory and autonomic nervous systems, causing severe gastrointestinal, cardiac, pulmonary, orthopedic, renal and ophthalmologic problems. Watch our awareness video.
 

  A Foundation dedicated to helping them . . .

The Dysautonomia Foundation is a 501(c)(3) nonprofit public charity that supports medical treatment, research, public awareness and social services for the benefit of people afflicted with FD. The Foundation has established the world's only two FD treatment centers and is the largest single source of funding for research and treatment specifically for the benefit of people with FD. Watch our video about FD and the Dysautonomia Foundation's work.
 

  Remarkable progress, incredible challenges . . .

FD was once considered a fatal disease, but the Foundation's efforts have resulted in dramatic improvements in the quality of life and life expectancy for FD patients. Still, people with FD must overcome tremendous challenges, including frequent hospitalizations, major surgeries and daily medical and supportive therapies as they try to live normal lives.
 

   Join us, and make a difference in their lives.

The gene that causes FD has been identified. Genetic therapies are possible, but they are costly and time-consuming to develop. A new clinical research facility is now exploring new therapies. Basic, clinical and translational researchers are working together to improve survival and create positive outcomes for people with FD. With your help, we can make a real difference in their lives.
 
 

FD News
DYScourse - FD News - available online
The latest news about the Foundation's work, the FD community and FD medical treatment & research is now available on our web site more
New FD Research Study
Experts have unraveled one of the great mysteries of FD. Featured in a recent edition of the journal Neurology, this clinical research study  explores the function of the nerve pathways that control blood pressure in FD. more
2012 FD Day - The 27th Annual FD Day Conference was held in NY on June 10th with presentations by researchers, doctors and FD adults, plus Q&A with experts.     more
Oxygen on Airplanes
Airline oxygen policies have changed. more
Research Consortium
FD is one of several diseases being studied by a research consortium of the nation's foremost autonomic experts. more
The Dysautonomia Foundation is a registered 501(c)3 non-profit organization.
Contributions are tax deductible to the extent permitted by law.
 
Dysautonomia Foundation, Inc.
315 W 39th St, Suite 701, New York, NY 10018 212-279-1066
(c) 2010 Dysautonomia Foundation, Inc. The FD logo is a registered trademark of the Dysautonomia Foundation, Inc.   Disclaimer    Privacy Policy