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11/09/12
The public should be informed about NBS bloodspots biobanking.
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09/10/12
Decisions on analytical validity and correlations between genes and disease expected in late September.
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08/02/12
New Grant on Clinical WGS Sequencing Policy
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04/04/12
Authors found that focus group participants understood the nuances and limitations of individual research results and placed priority on learning about results whose medical significance is already well understood by scientists.
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08/11/11
New chart reflects roles of physicians and genetic counselors in testing process.
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08/09/11
Meta-analysis in JAMA finds high accuracy for non-invasive prenatal sex determination
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03/30/11
Government-sponsored analysis led by Johns Hopkins bioethics scholar published in Pediatrics.
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11/24/10
American Journal of Medical Genetics spotlights GPPC research on biobanking.
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09/07/10
The National Human Genome Research Institute (NHGRI) has awarded the Genetics and Public Policy Center a two-year grant in the amount of $751,394 to examine the views and practices of genetic researchers who collect and study banked human DNA.
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ISSUE BRIEFS RSS Feed
WHAT'S HAPPENING
The combination of technology that permits the analysis of small amounts of DNA, increased availability of testing services, and lack of regulations to protect genetic privacy create an environment ripe for surreptitious testing.
While pharmacogenomics holds great promise, significant scientific, economic, policy, and practical challenges must be faced before the field's potential can be realized.
Considering the life-altering information that paternity testing can provide, it is imperative that laboratories perform the tests accurately and reliably.

In the News

The Johns Hopkins Berman Institute of Bioethics is offering several new summer courses in Bioethics through the Berman Institute Bioethics Intensives program.  More information about course offerings can be found here.

The Question of Return (Genome Technology 12/11)

Stored newborn blood samples raise concern (The Baltimore Sun, 4/11)

Privacy debate surrounds use of newborns' blood samples (MPR News, 4/11)

Is gene therapy for disease on the horizon? (CQ Researcher, 1/11)

 

 

 

 

 

 

 

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