Batten Disease Support and Research Association

Batten Disease Support and Research Association
166 Humphries Drive
Reynoldsburg,  OH  43068
Tel: 800-448-4570 740-205-6432
Fax: 866-648-8718
Email: bdsra1@bdsra.org
http://www.bdsra.org

Description: International support and research networking organization for families of children and young adults with Batten Disease. Sponsors education, advocacy, and support programs. Funds research, and sponsors a tissue donation program.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.