Carter Centers for Brain Research in Holoprosencephaly

Carter Centers for Brain Research in Holoprosencephaly
c/o Texas Scottish Rite Hospital P.O. Box 190567
2222 Welborn Street
Dallas,  TX  75219-9982
Tel: 214-559-8411
Fax: 214-559-8383
Email: hpe@tsrh.org
http://www.carterdatabase.org/hpe/

Description: Collaborative initiative created to gather, analyze, and share information about HPE. Maintains an international registry and an ongoing HPE database. Supports and conducts research and maintains a network of Centers of Excellence.

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Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.