 |
|
|
|
|
|
|
|
|
|
|
|
Welcome and Presentation of Certificates of Appreciation |
|
|
| |
Raynard Kington, M.D., Ph.D.
Deputy Director, National Institutes of Health |
|
|
| |
Webcast
Transcript
|
|
| |
|
|
|
Remarks of the New SACGHS Chair |
|
|
| |
Reed V. Tuckson, M.D.
SACGHS Chair |
|
|
| |
Webcast
Transcript
|
|
| |
|
|
|
The Importance of Family History in Health |
|
|
| |
Alan Guttmacher, M.D.
Deputy Director, National Human Genome Research Institute |
|
|
| |
Slides
Webcast
Transcript
|
|
| |
|
|
|
Perspectives on Genetic Discrimination |
|
| |
|
| |
Introduction |
|
|
| |
Agnes Masny, R.N., M.P.H., M.S.N.
Chair, SACGHS Task Force on Genetic Discrimination |
|
|
| |
Slides
Webcast
Transcript
|
|
| |
|
| |
Panel One: Perspectives of Members of the Public |
|
| |
|
| |
Heidi Williams |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Phaedra Malatek |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Rebecca Fisher, M.L.I.S. |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Tonia Phillips |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Paula Funk |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Maria Carolina Hinestrosa |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Phil Hardt |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Follow-up Questions for Panel One |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Panel Two: Health Care Provider Perspectives |
|
|
| |
Webcast
|
|
| |
|
| |
Jeff Shaw, M.S. - Oncology Genetics Counselor, Penrose Cancer Center |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Donald W. Hadley, M.S.- Associate Investigator, Social and Behavioral Research Branch National Human Genome Research Institute |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Mark Brantly, M.D. - Professor of Medicine, University of Florida Health Sciences Center |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Follow-up Questions for Panel Two |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Panel Three: Additional Stakeholder Perspectives |
|
|
| |
Webcast
|
|
| |
|
| |
Kathy Hudson, Ph.D.
Director, Genetics and Public Policy Center |
|
|
| |
Slides
Webcast
Transcript
|
|
| |
|
| |
Jane Massey Licata, J.D., Ph.D.
Partner, Licata & Tyrrell P.C.
Adjunct Professor, Rutgers School of Law-Camden |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Joanne Armstrong, M.D., M.P.H.
Senior Medical Director, Women's Health, Aetna
America's Health Insurance Plans |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Mike Aitken - Society for Human Resources Management |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Follow-up Questions for Panel Three |
|
|
| |
Webcast
Transcript
|
|
| |
|
| |
Roundtable Discussion with Three Panels |
|
|
| |
Facilitators: Ms. Masny and Dr. Tuckson |
|
|
| |
Webcast
Transcript
|
|
| |
|
|
|
Committee Review and Discussion of SACGHS Revised Draft Report on Coverage and Reimbursement of Genetic Tests and Services |
|
| |
|
| |
Report of the Deliberations of the Coverage and Reimbursement Task Force |
|
|
| |
Cynthia Berry, J.D.
Chair, Coverage and Reimbursement Task Force |
|
|
| |
Slides
Webcast
Transcript
|
|
| |
|
|
| |
Evaluation of Genomic Applications in Practice and Prevention: Implementation and Evaluation of a Model Approach |
|
|
| |
Linda Bradley, Ph.D.
Geneticist, Office of Genomics and Disease Prevention
Centers for Disease Control and Prevention |
|
|
| |
Slides
Webcast
Transcript
|
|
| |
|
|
| |
Review and Discussion of Revised Draft Report |
|
|
| |
Webcast
Transcript
|
|
| |
|
|
| |
Public Comments |
|
|
| |
Webcast
Transcript
|
|
| |
|
Top of Page |
