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Federal Regulations Concerning Pediatric Research
“Under what conditions is participation of children in research ethically acceptable?” This was the question the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research faced in 1974 when it began its deliberations on pediatric research. Its report, Research Involving Children, ultimately became the foundation for pediatric research regulations adopted in [...]
Executive Director Lisa M. Lee Presents “Privacy and Progress” at Personalized Medicine Conference
Presidential Commission for the Study of Bioethical Issues Executive Director Lisa M. Lee, Ph.D., M.S., presented the Commission’s recent report, Privacy and Progress in Whole Genome Sequencing at the 8th Annual Personalized Medicine Conference at the Harvard Medical School in Boston. The conference, held November 28-29, is organized by Harvard Medical School, Harvard Business School, [...]
Commission Member Anita Allen Presents “Privacy and Progress” at Cold Spring Harbor Laboratory Meeting
Presidential Commission for the Study of Bioethical Issues Member Anita Allen, J.D., Ph.D., presented the Commission’s most recent report, Privacy and Progress in Whole Genome Sequencing, to a key audience of clinicians and scientists whose work involves the very technology the report addresses. Allen’s presentation was part of an Ethics Panel at the Cold Spring [...]
