Cancer Incidence – Surveillance, Epidemiology, and End
Results (SEER) Registries Research Data
Metadata:
- Identification_Information:
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Citation:
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Citation_Information:
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Originator:
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U.S. Department of Health and Human Services - National Cancer
Institute, (NCI)
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Publication_Date: April 16 2012
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Title: Cancer Incidence – Surveillance,
Epidemiology, and End Results (SEER) Registries Research Data
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Edition: None
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Geospatial_Data_Presentation_Form: Vector Digital Data
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Publication_Information:
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Publication_Place: Bethesda, Maryland
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Publisher: National Cancer Institute, Surveillance Systems Branch
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Online_Linkage: <http://seer.cancer.gov>
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Description:
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Abstract:
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SEER Research Data cancer incidence data with associated population
data. Geographic areas available are county and SEER registry.
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Purpose:
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The Surveillance, Epidemiology, and End Results (SEER) Program of
the National Cancer Institute collects and distributes high
quality, comprehensive cancer data from a number of
population-based cancer registries. Data include patient
demographics, primary tumor site, morphology, stage at diagnosis,
first course of treatment, and follow-up for vital status. The
SEER Program is the only comprehensive source of population-based
information in the United States that includes stage of cancer at
the time of diagnosis and survival within each stage.
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Supplemental_Information:
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The Surveillance, Epidemiology, and End Results (SEER) Program of
the National Cancer Institute is a source of information on
cancer incidence and survival in the United States. Case
ascertainment for SEER began on January 1, 1973, in the states of
Connecticut, Iowa, New Mexico, Utah, and Hawaii and the
metropolitan areas of Detroit and San Francisco-Oakland. In
1974-1975, the metropolitan area of Atlanta and the 13-county
Seattle-Puget Sound area were added. In 1978, 10 predominantly
black rural counties in Georgia were added, followed in 1980 by
the addition of American Indians residing in Arizona. Three
additional geographic areas participated in the SEER program
prior to 1990: New Orleans, Louisiana (1974-1977, rejoined 2001);
New Jersey (1979-1989, rejoined 2001); and Puerto Rico
(1973-1989). The National Cancer Institute also began funding a
cancer registry that, with technical assistance from SEER,
collects information on cancer cases among Alaska Native
populations residing in Alaska. In 1992, the SEER Program was
expanded to increase coverage of minority populations, especially
Hispanics, by adding Los Angeles County and four counties in the
San Jose-Monterey area south of San Francisco. In 2001, the SEER
Program expanded coverage to include Kentucky and Greater
California, and New Jersey and Louisiana once again became
participants. In 2010, the SEER program expanded coverage to include
all of the state of Georgia.
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SEER currently collects and publishes cancer incidence and survival data
from population-based cancer registries covering approximately 28 percent
of the US population. For more information on this, please view the
SEER Research Data. SEER coverage
includes 26 percent of African Americans, 41 percent of Hispanics, 43 percent
of American Indians and Alaska Natives, 54 percent of Asians, and 71 percent
of Hawaiian/Pacific Islanders. (Details are provided in the table:
Number of Persons by Race
and Hispanic Ethnicity for SEER Participants.) The SEER Registries routinely
collect data on patient demographics, primary tumor site, morphology, stage at diagnosis,
first course of treatment, and follow-up for vital status. The
SEER Program is the only comprehensive source of population-based
information in the United States that includes stage of cancer at
the time of diagnosis and survival within each stage. The
mortality data reported by SEER are provided by the National
Center for Health Statistics and cover the entire US population.
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The SEER Research Data Data include SEER incidence and population
data associated by age, sex, race, year of diagnosis, and
geographic areas (including SEER
registry and county).
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Time_Period_of_Content:
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Time_Period_Information:
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Range_of_Dates/Times:
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Beginning_Date: 1973
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Ending_Date: 2009
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Status:
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Maintenance_and_Update_Frequency: Annually
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Spatial_Domain:
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Bounding_Coordinates:
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West_Bounding_Coordinate: -178.217598
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East_Bounding_Coordinate: -66.969271
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North_Bounding_Coordinate: 71.406235
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South_Bounding_Coordinate: 18.921786
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Keywords:
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Theme:
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Theme_Keyword_Thesaurus: Not Applicable
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Theme_Keyword: Cancer, Incidence, SEER, Epidemiology,
Health, Disease, Registry
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Place:
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Place_Keyword_Thesaurus: Not Applicable
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Place_Keyword:
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United States, US, SEER, SEER 9, SEER 13, SEER 17, SEER 18, County, Alaska,
Arizona, Atlanta (Georgia), California, Connecticut, Detroit
(Michigan), Hawaii, Iowa, New Mexico, Rural Georgia, San
Francisco – Oakland (California), San Jose – Monterey
(California), Seattle (Washington), Utah, Kentucky, Los Angeles, Louisiana, New Jersey, Greater Georgia
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Access_Constraints:
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A signed SEER Research Data Data Agreement form is required to access
the SEER data. <http://seer.cancer.gov/data/request.html>
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Use_Constraints:
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1. You may not use nor permit others to use the data in any way.
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2. You may not present/publish data in which an individual can be
identified. You may not publish any information on a single
individual including any information generated on an individual
case by the case listing session of SEER*Stat. In addition,
publication of small cell sizes should be avoided.
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3. You may not attempt to link nor permit others to link the data
with individually identified records in another data base.
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4. You may not attempt to learn the identity of any person whose
cancer data is contained in the supplied file(s).
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5. If the identity of any person is discovered inadvertently, then
the following should be done; a) no use will be made of this
knowledge, b) the SEER Program will be notified of the incident, c)
no one else will be informed of the discovered identity.
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6. You may not release nor permit others to release the data in
full or in part to any person except with the written approval of
the SEER Program.
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7. If accessing the data from a centralized location on a time
sharing computer system or LAN with SEER*Stat or another
statistical package, you may not share your logon name and password
with any other individuals. You may also not allow any other
individuals to use your computer account after you have logged on
with your logon name and password.
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8. For all software provided by the SEER Program, you may not copy,
distribute, reverse engineer, profit from its sale or use, or
incorporate it in any other software system.
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9. The source of information should be cited in all publications.
The appropriate citation is associated with the data file used.
Please see Suggested Citations on the SEER*Stat Help menu, or the
Readme.txt associated with the ASCII text version of the SEER data
(CD # 2).
- Data_Quality_Information:
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Logical_Consistency_Report:
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The SEER Program is considered the standard for quality among
cancer registries around the world. Quality control has been an
integral part of SEER since its inception.
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Completeness_Report:
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Studies are conducted in the SEER areas to evaluate the
quality and completeness of the data being reported (SEER's
standard for case ascertainment is 98 percent). Quality Control
studies are conducted every other year, actually in even numbered
calendar years. These include potentially casefinding,
reabstracting/recoding, and reliability studies. The
latter involve virtually all abstractors and coders in
each registry coding the same 10 to 20 cases which are
selected to focus on coding issues that are known to be
a problem. The cases are also coded by "experts" to
obtain the correct answers. In odd numbered calendar
years, training is conducted for SEER registries that
focuses on problems identified in the QC studies.
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Lineage:
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Source_Information:
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Source_Citation:
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Citation_Information:
-
Originator:
-
U.S. Department of Health and Human Services - National Cancer
Institute, (NCI)
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Publication_Date: April 16 2012
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Title: Cancer Incidence – Surveillance,
Epidemiology, and End Results (SEER) Registries Research Data
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Edition: November 2011 Submission
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Geospatial_Data_Presentation_Form: Tabular Data
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Publication_Information:
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Publication_Place: Bethesda, Maryland
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Publisher: National Cancer Institute, Surveillance Systems Branch
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Other_Citation_Details:
Surveillance, Epidemiology, and End Results (SEER) Program (www.seer.cancer.gov)
SEER*Stat Database: Incidence - SEER 9 Regs Research Data, Nov 2011 Sub (1973-2009)
- Linked To County Attributes - Total U.S., 1969-2010 Counties, National Cancer
Institute, DCCPS, Surveillance Research Program, Surveillance Systems Branch, released April 2012, based on the November 2011 submission.
Surveillance, Epidemiology, and End Results
(SEER) Program (www.seer.cancer.gov) SEER*Stat Database: Incidence - SEER 13 Regs Research Data,
Nov 2011 Sub (1992-2009) - Linked To County Attributes - Total U.S., 1969-2010 Counties,
National Cancer Institute, DCCPS, Surveillance Research Program, Surveillance Systems Branch, released April 2012, based on the November 2011 submission.
Surveillance, Epidemiology, and End Results
(SEER) Program (www.seer.cancer.gov) SEER*Stat Database: Incidence - SEER 18 Regs Research Data,Nov
2011 Sub (2000-2009) - Linked To County Attributes - Total U.S., 1969-2010 Counties, National
Cancer Institute, DCCPS, Surveillance Research Program, Surveillance Systems Branch, released April 2012, based on the November 2011 submission.
Surveillance, Epidemiology, and End Results (SEER) Program (www.seer.cancer.gov)
ASCII Text Data: Incidence - SEER 9 Regs Research Data, Nov 2011 Sub (1973-2009)
- Linked To County Attributes - Total U.S., 1969-2010 Counties, National Cancer
Institute, DCCPS, Surveillance Research Program, Surveillance Systems Branch, released April 2012, based on the November 2011 submission.
Surveillance, Epidemiology, and End Results
(SEER) Program (www.seer.cancer.gov) ASCII Text Data: Incidence - SEER 13 Regs Research Data,
Nov 2011 Sub (1992-2009) - Linked To County Attributes - Total U.S., 1969-2010 Counties,
National Cancer Institute, DCCPS, Surveillance Research Program, Surveillance Systems Branch, released April 2012, based on the November 2011 submission.
Surveillance, Epidemiology, and End Results
(SEER) Program (www.seer.cancer.gov) ASCII Text Data: Incidence - SEER 17 Regs Research Data, Nov
2011 Sub (2000-2009) - Linked To County Attributes - Total U.S., 1969-2010 Counties, National
Cancer Institute, DCCPS, Surveillance Research Program, Surveillance Systems Branch, released April 2012, based on the November 2011 submission.
- Online_Linkage: <http://seer.cancer.gov>
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Type_of_Source_Media: CD-ROM, Text File, Computer
Program
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Source_Time_Period_of_Content:
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Time_Period_Information:
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Range_of_Dates/Times:
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Beginning_Date: 1973
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Ending_Date: 2009
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Source_Citation_Abbreviation: SEER Cancer Incidence November 2011 submission
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Source_Contribution: Used for Data.
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Process_Step:
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Process_Description:
SEER 9 Registries Database
- The SEER 9 registries are Atlanta, Connecticut, Detroit, Hawaii, Iowa, New Mexico, San Francisco-Oakland, Seattle-Puget Sound, and Utah. In this data set, cases diagnosed from 1973 through 2009 are available for all registries except Seattle-Puget Sound (1974+) and Atlanta (1975+). The database contains one record for each of 4,188,211 tumors. Cases are associated with the population data using three racial groups: White, Black, and Other. The Other race category used in the SEER 9 Registry database consists of American Indian/Alaska Native and Asian/Pacific Islander combined.
SEER 13 Registries Database
- This dataset contains data from the SEER 9 registries (listed above), plus Los Angeles, San Jose-Monterey, Rural Georgia, and the Alaska Native Tumor Registry. In population-linked versions of these data, cases diagnosed from 1992 through 2009 are available, one record for each of 3,380,294 tumors. Cases are associated with the population data using four racial groups: White, Black, American Indian/Alaska Native, Asian/Pacific Islander and Hispanic origin.
SEER 18 Registries Database
- This database contains data from the SEER 13, plus the Greater California, Kentucky, Louisiana, and New Jersey. In this dataset, cases from 2000-2009 are available, but because of the impact of Hurricane Katrina on Louisiana's population for the July - December 2005 time period, Louisiana cases diagnosed for that six-month time period have been excluded from the research database. This database contains one record for each of 4,149,255 tumors. Hurricane Katrina Impacted Louisiana Cases (cases diagnosed from July-December 2005) are provided with the data, but they are considered supplemental data. The research database plus the Louisiana July-December 2005 cases contain 4,159,794 tumor records. See Adjustments for Areas Impacted by Hurricanes Katrina and Rita for more information. In SEER*Stat sessions that do not require population data (e.g., frequencies, survival, case listing), all public data for SEER registries are included in one database (SEER 18 Registry 1973-2009 with varying years of diagnosis per registry). This database includes 7,252,157 tumors diagnosed from 1973-2009, and 7,262,696 tumors diagnosed from 1973-2009 including the Hurricane Katrina Impacted Louisiana Cases.
See Number of SEER Participants
by Race and Hispanic Ethnicity for
the percentage of the U.S. population covered by each registry
combination.
* The "SEER Research" data used to be named the "SEER Limited-Use" data file. The data are available to researchers free-of-charge for research purposes. Each individual who accesses the data must first sign a data-use agreement.
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Source_Used_Citation_Abbreviation: SEER 1973 - 2009 November 2011 submission
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Process_Date: November 2011
- Entity_and_Attribute_Information:
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Overview_Description:
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Entity_and_Attribute_Overview: Documentation from SEER
Website.
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Entity_and_Attribute_Detail_Citation:
<http://seer.cancer.gov/data/documentation.html>
- Distribution_Information:
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Distributor:
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Contact_Information:
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Contact_Organization_Primary:
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Contact_Organization: NCI
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Contact_Address:
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Address_Type: Email
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Address: seerweb@imsweb.com
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Contact_Instructions: Please email seerweb@imsweb.com
with questions.
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Resource_Description: ASCII (text data), Research Data
CD-ROM, or SEER*Stat Software
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Distribution_Liability:
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These data were prepared by an agency of the Unites States
Government. Neither the United States Government nor and agency
thereof, nor any of their employees, make any warranty, expressed
or implied, or assumes any legal liability or responsibility for
the accuracy, completeness, or usefulness of any information,
apparatus, product, or process disclosed in this report, or
represents that its use would not infringe privately owned rights.
Reference therein to any specific commercial product, process, or
service by trade name, trademark, manufacturer, or otherwise does
not necessarily constitute or imply its endorsement,
recommendation, or favoring by the Unites States Government or any
agency thereof. Any views and opinions of authors expressed herein
do not necessarily state or reflect those of the United States
Government or any agency thereof.
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Standard_Order_Process:
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Digital_Form:
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Digital_Transfer_Information:
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Format_Name: ASCII
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Format_Version_Date: April 16, 2012
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Transfer_Size: 12.501
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Digital_Transfer_Option:
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Online_Option:
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Computer_Contact_Information:
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Network_Address:
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Network_Resource_Name: <http://seer.cancer.gov>
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Access_Instructions:
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There are three ways to obtain the Research Data data. Please read
through each option on the web page below before making a
decision as to which methods best suits your needs. A signed
SEER Research Data Data Agreement is required in each case. All
options provide access to the SEER Research Data Data. You must
use SEER*Stat in client-server mode in order to access US
mortality data and databases for calculating incidence-based
mortality rates.
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<http://seer.cancer.gov/data/options.html>
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Fees:
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This data is freely available provided that you meet the data use
requirements.
- Metadata_Reference_Information:
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Metadata_Date: 20100331
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Metadata_Contact:
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Contact_Information:
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Contact_Organization_Primary:
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Contact_Organization: NCI
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Contact_Address:
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Address_Type: Email
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Address: seerweb@imsweb.com
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Contact_Instructions: Please email seerweb@imsweb.com
with questions.
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Metadata_Standard_Name: FGCD Contact Standards for Digital
Geospatial Metadata
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Metadata_Standard_Version: FGDC-STD-001-1998
End of Metadata.