CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info
CORD Rare Disease Day Hero News Release Rare Heroes Applauded at Annual Rare Disease Day Gala Celebration » View press release Rare Disease Day Press Release:
5th Annual Rare Disease Day Conference 2013, now held in Toronto Rare Disease Day Dinner Award Gala |
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CORD Fall 2012 Newsletter
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Rare Disease Publication by Mediaplanet an Independent supplement to the National Post. » Click here to read full publication. |
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» MPN Network Invite and Agenda |
Audio News Release on Biosimilars, We went your Thoughts on this Important Issue
» Click here to listen and send all comments to info@raredisorders.ca
Congratulations to all the winners of the first-ever CORD Rarity Awards
Political Leadership: Joy Smith MP and Kirsty Duncan MP
Public Policy: David K. Lee Health Canada
Patient Leadership: Canadian Organization for Rare Disorders
Health Professional Leadership Dr. Cheryl Greenberg
Scientific Excellence Dr. Lorne Clarke
Award of Honour: Rare Disease Foundation (BC)
Award for Volunteerism: Durhane Wong-Rieger
Rare Honour Awards: Barry Katsof, Jonathan Pitre, Dr. Joanne Rommens, Maureen Sauve, Dr. Schellenberg and PID Clinic
Canadian Organization for Rare Disorders Welcomes Announcement of Orphan Drug Framework
TORONTO, Oct. 3, 2012 - The Canadian Organization for Rare Disorders, on behalf of the 2.8 million Canadians with rare disorders, welcomes Health Minister Aglukkaq's announcement of the "first ever Canadian framework to increase access to new treatments and information" and the launch of Orphanet-Canada. » View press release
All I see is Hope - One woman's Story of Overcoming the Odds. CORD Board Member, Maureen Smith's struggle with her own rare disorder and how medications have drastically improved her life. Click here to watch her story.
International Alliance of Patients' Organizations
CORD encourages all patient groups to join IAPO. The new IAPO Membership Guide
can be found below » Read more
On-line Support Group Model
Alpha-1 Canada
has been developing an On-Line Support Group Model for patients. For more info, contact Jim.
» Online Support Group Leader Manual and Resource Guide
Liberal Party of Canada's response to three questions from CORD [ENG] [FR]
EURODIS Newsletter
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 434 rare diseases patient organisations in over 43 countries. » Sign up
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