National and State Cancer Registries
This compilation of resources provides links to information on cancer statistics, such as incidence, mortality, and the prevalence of certain risk factors.
Registry Resources
These resources provide information about sources of national and statewide cancer statistics.
NCI Registries
- Breast and Colon Cancer Family Registries
The Breast and Colon Cancer Family Registries (Breast-/Colon-CFRs) are resources for investigators to use in conducting studies on the genetics and molecular epidemiology of breast and colon cancer. The CFRs are particularly interested in identifying and characterizing cancer susceptibility genes; defining gene-gene and gene-environment interactions in cancer etiology; and exploring the translational, preventive, and behavioral implications of research findings. - Cancer Genetics Network (CGN)
The Cancer Genetics Network (CGN) is a research resource for investigators conducting research on the genetic basis of human cancer susceptibility, integration of this information into medical practice, and behavioral, ethical, and public health issues associated with human genetics. - Surveillance, Epidemiology, and End Results (SEER) Program
The Surveillance, Epidemiology, and End Results (SEER) Program collects information on cancer incidence, prevalence, and survival from specific geographic areas representing 28 percent of the U.S. population and reports on all of these plus cancer mortality for the entire country. - SEER-Medicare Linked Database
Data for this database come from the SEER Program of cancer registries that collects clinical, demographic, and cause of death information for persons with cancer, and from Medicare claims for covered health care services from the time of a person's Medicare eligibility until death.
Other National Registries
- North American Association of Central Cancer Registries (NAACCR)
The North American Association of Central Cancer Registries (NAACCR) is a professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; aggregates and publishes data from central cancer registries; and promotes the use of cancer surveillance data and systems for cancer control and epidemiologic research, public health programs, and patient care. - National Program of Cancer Registries
The Centers for Disease Control and Prevention's (CDC) National Program of Cancer Registries (NPCR) provides support for states and territories to maintain registries that provide high-quality data. The Web site includes cancer statistics and an online query system for cancer incidence data. NPCR supports statewide, population-based cancer registries in 45 states, the District of Columbia, Puerto Rico, and the U.S. Pacific Island Jurisdictions.
State/Regional Registries
* National Program of Cancer Registries (NPCR)
** Surveillance, Epidemiology, and End Results (SEER) Program
Private Databases
These databases may be used to assess patterns and quality of cancer care.
- American College of Surgeons National Cancer Database
The American College of Surgeons National Cancer Database (NCDB) is a nationwide oncology outcomes database for more than 1,500 Commission-accredited cancer programs in the United States and Puerto Rico. About 70 percent of all newly diagnosed cases of cancer in the United States are captured at the institutional level and reported to it. Begun in 1989, the database contains records from hospital cancer registries across the United States. Data on all types of cancer are tracked and analyzed, and are used to explore trends in cancer care, to create regional and state benchmarks for participating hospitals, and to serve as the basis for quality improvement. - Healthcare Cost and Utilization Project (HCUP)
The Healthcare Cost and Utilization Project (HCUP) is a family of health care databases and related software tools developed through a Federal-State-Industry partnership to build a multi-State health data system for health care research and decision making. - National Comprehensive Cancer Network
The National Comprehensive Cancer Network® (NCCN®), which is a not-for-profit alliance of 21 of the world's leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer. The NCCN Guidelines® are a comprehensive set of guidelines detailing the sequential management decisions and interventions for the malignant cancers that affect 97 percent of all patients with cancer. In addition, separate guidelines relate to major prevention and screening topics and another set of pathways focuses on the major supportive care areas. The NCCN Drugs & Biologics Compendium (NCCN Compendium™) is based directly on the recommendations contained in the NCCN Guidelines® and designed to support decision-making about the appropriate use of drugs and biologics in patients with cancer.
