Provides information about research resources and opportunities throughout the National Institutes of Health, at other federal agencies, and outside the Federal government with a focus on rare diseases.
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NIH Center for Scientific Review (CSR)
The Center for Scientific Review (CSR) is the portal for NIH grant applications and their review for scientific merit. We organize the peer review groups or study sections that evaluate the majority (70%) of the research grant applications sent to NIH. We also receive all grant applications for NIH, as well as for some other components of the U.S. Department of Health and Human Services (DHHS). Since 1946, our mission has remained clear and timely: to see that NIH grant applications receive fair, independent, expert, and timely reviews -- free from inappropriate influences -- so NIH can fund the most promising research.
Human Biospecimen Database
Welcome to the Human Biospecimen Database. This Web site contains a searchable database of human biospecimens collected, stored, and distributed by biorepositories in the United States for research use. The purpose of this project is to facilitate research leading to treatments and cures for rare diseases, as well as more common diseases, by improving researchers' access to needed human biospecimens by providing a system that enables them to access information about biorepositories and their collections.
Clinical and Translational Science Award Intellectual Property (CTSA-IP)
CTSA-IP provides a searchable database of technologies related to rare diseases that are available for licensing. The purpose of this website is to aggregate and market technologies from CTSA institutions as well as those of the National Institutes of Health, with the goal of enhancing research activity and private partnerships across the CTSA consortium.
At the National Institutes of Health
NICHD Resources for Researchers
Links to bioengineering, human tissue repositories, disease models, neuroscience research resources, and other resources for research.
ARRA: ORDR Recovery Act Information
Short-term funding opportunities are available for a variety of rare disease-related projects through the NIH Challenge Grant program, part of the American Recovery and Reinvestment Act of 2009.
NIH Center for Scientific Review (CSR)
The Center for Scientific Review (CSR) is the portal for NIH grant applications and their review for scientific merit. We organize the peer review groups or study sections that evaluate the majority (70%) of the research grant applications sent to NIH. We also receive all grant applications for NIH, as well as for some other components of the U.S. Department of Health and Human Services (DHHS). Since 1946, our mission has remained clear and timely: to see that NIH grant applications receive fair, independent, expert, and timely reviews -- free from inappropriate influences -- so NIH can fund the most promising research.
Other Federal Agencies
grants.gov
A single governmentwide source for information about grants programs across the Federal government.
HCUP Main Page
The Healthcare Cost and Utilization Project (HCUP, pronounced "H-Cup") is a family of health care databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). HCUP databases bring together the data collection efforts of State data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of patient-level health care data (HCUP Partners). HCUP includes the largest collection of longitudinal hospital care data in the United States, with all-payer, encounter-level information beginning in 1988. These databases enable research on a broad range of health policy issues, including cost and quality of health services, medical practice patterns, access to health care programs, and outcomes of treatments at the national, State, and local market levels.
Non-Federal Resources
United Mitochondrial Disease Foundation (UMDF)
The UMDF promotes research and education for the diagnosis, treatment, and cure of mitochondrial disorders and provides support to affected individuals and families. Through its Research Program, UMDF awards more than $1 million per year in grants to scientists conducting basic research into mitochondrial disorders as well as for clinical studies focusing on diagnosis and treatment.
Histiocytosis Association of America’s Research Program
The Histiocytosis Association of America’s Research Program seeks to attain its goal of a cure through a variety of efforts, the foremost being the direct funding of both basic and clinical scientific research projects. Through the annual Research Grant Awards, the Association supports basic scientific research into understanding the function of cells and the disease process.
Beginning January 4, the 2010 Request for Proposals will be available on the Association’s website at www.histio.org/requestforproposals. Information regarding the application deadline, notification of awarded grants, and maximum funding request can be found on this page as well. Researchers considering applying to the Association’s research grant program are encouraged to direct any questions to the Association at grants@histio.org, or by phone at 1 800-548-2758 (toll-free in the United States and Canada only) or 856-589-6606.
Muscular Dystrophy Association (MDA)
MDA's research program is a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular disease. MDA combats some 40 neuromuscular diseases through a worldwide extramural research program that includes basic, clinical, and translational research efforts as well as a clinical research training grant program. MDA's focus is not simply to fund good science but to fund good science aimed at developing treatments and therapies for neuromuscular disease.
National Ataxia Foundation (NAF)
The National Ataxia Foundation funds four types of research grants for new and innovative studies that are relevant to the cause, pathogenesis, or treatment of the hereditary or sporadic ataxias.
National Marfan Foundation
The National Marfan Foundation (NMF) is requesting applications for one- or two-year grants for basic or clinical research on Marfan syndrome. The NMF’s grant program is designed to provide financial support for investigators studying any or all disciplines involved in Marfan syndrome. Grant awards are based on proposal evaluation by the NMF Scientific Advisory Board with the approval of the NMF Board of Directors.
National Organization for Rare Disorders (NORD)
NORD's Research Program provides seed money grants to academic scientists for clinical studies related to the development of diagnostics or treatments of rare diseases. Requests for proposals are posted once a year in the late winter or early spring. NORD's Research Program also includes the NORD/Roscoe Brady Lysosomal Storage Diseases Fellowships.
NBIA Disorders Association
Seed money grants in the amount of up to $40,000 for 1 year. Multi-year funding may be available for some grants. Abstract with letter of intent due June 10, 2011.
NephCure Foundation
The NephCure Foundation is the only organization devoted exclusively to supporting research into the cause of and cure for Idiopathic Nephrotic Syndrome and primary Focal Segmental Glomerulosclerosis (FSGS). Comprised of patients, their families and friends, researchers, physicians, and other health care professionals, NephCure has a growing program of scientific support.
The Aplastic Anemia & MDS International Foundation
The Aplastic Anemia MDS International Foundation offers 2-year research grants of $30,000 per year to advance the understanding and treatment of bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH).The research grant program application and guidelines are available at the MDSIF Web site.
The Progeria Research Foundation (PRF)
Awards of up to $50,000 per year for up to 2 years are available from PRF to support investigators for basic science research aimed at developing effective treatments and/or a cure for Hutchinson-Gilford Progeria Syndrome and its aging-related disorders. Principal investigators must hold postdoctoral positions or beyond. Awards will be granted only to applicants affiliated with institutions with 501(c)3 status or the equivalent for foreign institutions.
Vasculitis Foundation
The purpose of the Vasculitis Foundation Research Grant Program is to provide 1- or 2-year seed grants to support pilot studies in researching the etiology; epidemiology; diagnosis; treatment; including approaches that would prevent complications; and development of coping skills for living with this disease.