Overview of the NHLBI Biologic Specimen and Data Repository
The National Heart, Lung and Blood Institute (NHLBI) Biologic Specimen and Data Repository is the coming together of two entities: the NHLBI Biologic Specimen Repository (NHLBI Biorepository), managed by the NHLBI, Division of Blood Diseases and Resources (DBDR), Transfusion Medicine and Cellular Therapeutics Branch, and the NHLBI Data Repository, managed by the NHLBI, Division of Cardiovascular Sciences (DCVS), Epidemiology Branch. Most NHLBI-sponsored research studies have provided datasets to the NHLBI for sharing with qualified researchers, while a subset of these studies have elected to supply selected biospecimens as a shared resource. One notable difference between the Data and the Biologic Specimen Repositories is that submission of data to the Data Repository is mandatory for many NHLBI-sponsored research activities, while submission of biospecimens to the NHLBI Biorepository is by application only unless otherwise designated in the sponsorship agreement.
The Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC) was established under contract to the NHLBI/DBDR in September 2008. The goal of BioLINCC is to facilitate and coordinate the existing activities of the NHLBI Biorepository and the Data Repository and to expand their scope and usability to the scientific community through a single web-based user interface.
For further details regarding the submission of new data and biospecimen collections, please refer to Section 6.0 of the Handbook.
To begin the biospecimen collection submission process, access the Register to Submit a Biospecimen Collection page.
For more information on the Data Set preparation policy, access the Guidelines for Data Set Preparation.