National Cancer Institute
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Outcomes Research Branch
Cancer Control and Population Sciences

Patient-Reported Outcomes Measurement Information System (PROMIS):

This page links to some files in Portable Document Format (PDF).

How has information about PROMIS been disseminated?

In 2006 and 2008, the NIH sponsored a conference on PROMIS to publicly introduce the project to the scientific community. Participants discussed a range of conceptual, clinical, and methodological aspects of assessing and using patient-reported outcomes (PROs) in clinical research and practice. In March 2008, the NIH sponsored a second PROMIS Conference: Improving Measurement of Patient Reported Outcomes -- New Tools and the Science Behind ThemExternal Web Site Policy.

In its May 2007 issue, the journal Medical Care published a special supplementExternal Web Site Policy devoted to the PROMIS project and the instrument development process. The supplement covered the following topics:

  • Developing the Patient-Reported Outcomes Measurement Information System (PROMIS).
  • The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap Cooperative Group During its First Two Years.
  • Evaluation of Item Candidates: The PROMIS Qualitative Item Review.
  • Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks: Plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).
  • Item Response Theory Analyses of Physical Functioning Items in the Medical Outcomes Study.
  • Practical Issues in the Application of Item Response Theory: A Demonstration Using Items From the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales.
  • Considerations for Developing Interfaces for Collecting Patient-Reported Outcomes That Allow the Inclusion of Individuals With Disabilities.

A list of publications and related supporting documents is available on the PROMIS Web siteExternal Web Site Policy.


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Last modified:
08 Mar 2011
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