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U.S. Statistics from NIDDK

Summary fact sheets

Comprehensive data sets

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Other sources for statistics

For additional statistical information on diabetes, digestive, and kidney diseases, please contact the following organizations:

    Agency for Healthcare Research and Quality
    540 Gaither Road
    Rockville, MD 20850
    Phone: 301–437–1364
    Internet: www.ahrq.gov/ (AHRQ Main)
    Healthcare Cost and Utilization Project (HCUP)
    Internet: www.ahrq.gov/data/hcup/ (HCUP Main)
    www.hcup-us.ahrq.gov/overview.jsp (HCUP Overview)
    www.hcupnet.ahrq.gov/ (free online querying tool)

    American Diabetes Association
    1701 North Beauregard Street
    Alexandria, VA 22311
    Phone: 1–800–232–3472
    Phone: 1–800–DIABETES (342–2383) (national number that provides the most information)
    Phone: 1–888–DIABETES (342–2383) (local number that provides referrals and other information)
    Internet: www.diabetes.org Exit Disclaimer Icon

    American Foundation for Urologic Disease

    1128 North Charles Street
    Baltimore, MD 21201
    Phone: 1–800–242–2383 - Urologic Foundation Information Hotline
    Phone: 410–468–1800
    Fax: 410–468–1808
    Email: admin@afud.org
    Internet: www.afud.org Exit Disclaimer Icon

    American Liver Foundation (ALF)

    75 Maiden Lane, Suite 603
    New York, NY 10038–4810
    Phone: 1–800–465–4837
    Phone: 1–888–443–7222
    Phone: 973–256–2550
    Fax: 973–256–3214
    Email: info@liverfoundation.org
    Internet: www.liverfoundation.org Exit Disclaimer Icon

    American Society of Nephrology (ASN)

    2025 M Street NW., Suite 800
    Washington, DC 20036
    Phone: 202–367–1190
    Fax: 202–367–2190
    Email: asn@dc.sba.com
    Internet: www.asn-online.org Exit Disclaimer Icon

    American Urological Association (AUA)

    1000 Corporate Boulevard
    Linthicum, MD 21090
    Phone: 866–RING–AUA
    Internet: www.auanet.org Exit Disclaimer Icon
    www.urologyhealth.org Exit Disclaimer Icon

    Celiac Sprue Association/USA, Inc.
    P.O. Box 31700
    Omaha, NE 68131–0700
    Phone: 402–558–0600
    Fax: 402–558–1347
    Email: celiacs@csaceliacs.org
    Internet: www.csaceliacs.org Exit Disclaimer Icon

    Center for Medicare and Medicaid Services

    7500 Security Boulevard
    Baltimore, MD 21244
    Phone: 1–800–633–4227 (Medicare) - Patients
    Phone: 410–786–3000 (Main Switchboard)
    Internet: http://www.cms.gov/

    Centers for Disease Control and Prevention (CDC)
    1600 Clifton Road, NE.
    Mail Stop G37
    Atlanta, GA 30333
    Phone: 404–639–3311 (public inquiries)
    Internet: www.cdc.gov

    Hepatitis Foundation International (HFI)
    30 Sunrise Terrace
    Cedar Grove, NJ 07009–1423
    Phone: 1–800–891–0707
    Fax: 973–857–5044
    Internet: www.hepfi.org Exit Disclaimer Icon

    International Diabetes Federation (IDF)

    1 Rue Defacqz
    B-1000
    Brussels, Belgium
    Phone: 32–2/538–5511
    Fax: 32–2/538–5114
    Email: idf@idf.org
    Internet: www.idf.org Exit Disclaimer Icon

    Interstitial Cystitis Association (ICA)

    51 Monroe Street, Suite 1402
    Rockville, MD 20850
    Phone: 1–800–HELP–ICA (435–7422)
    Phone: 301–610–5300
    Fax: 301–610–5308
    Email: icamail@ichelp.org
    Internet: www.ichelp.org Exit Disclaimer Icon

    Intestinal Disease Foundation, Inc.

    The Landmarks Building, Suite 525
    One Station Square
    Pittsburgh, PA 15219
    Phone: 412–261–5888
    Fax: 412–471–2722

    Juvenile Diabetes Research Foundation (JDRF) International
    120 Wall Street
    New York, NY 10005–4001
    Phone: 1–800–JDF–CURE (533–2873)
    Phone: 212–785–9500
    Fax: 212–785–9595
    Email: info@jdfcure.org
    Internet: www.jdf.org Exit Disclaimer Icon

    Joslin Diabetes Center

    1 Joslin Place
    Boston, MA 02215
    Phone: 617–732–2400
    Internet: www.joslin.org Exit Disclaimer Icon

    National Association for Continence (NAFC)
    P.O. Box 8310
    Spartanburg, SC 29305–8310
    Phone: 1–800–BLADDER (252–3337)
    Phone: 864–579–7900 (business office)
    Fax: 864–579–7902
    Internet: www.nafc.org Exit Disclaimer Icon

    National Center for Health Statistics

    Presidential Building, Room 1064
    6525 Belcrest Road
    Hyattsville, MD 20782–2003
    Phone: 301–458–4636
    Internet: www.cdc.gov/nchs
    CDC Growth Charts: United States: www.cdc.gov/growthcharts

    National Kidney Foundation (NKF)

    30 East 33rd Street
    New York, NY 10016
    Phone: 1–800–622–9010
    Phone: 212–889–2210
    Fax: 212–689–9261
    Email: info@kidney.org
    Internet: www.kidney.org Exit Disclaimer Icon

    Polycystic Kidney Disease Foundation

    4901 Main Street, Suite 200
    Kansas City, MO 64112
    Phone: 1–800–PKD–CURE (753–2873)
    Phone: 816–931–2600
    Fax: 816–931–8655
    Email: pkdcure@pkdcure.org
    Internet: www.pkdcure.org Exit Disclaimer Icon

    The Simon Foundation for Continence

    P.O. Box 815
    Wilmette, IL 60091
    Phone: 1–800–23–SIMON (237–4666)
    Phone: 847–864–3913
    Fax: 847–864–9758
    Email: simoninfo@simonfoundation.org
    Internet: www.simonfoundation.org Exit Disclaimer Icon

    Transplant Recipient International Organization (TRIO)

    1000 16th Street, NW., Suite 602
    Washington, DC 20036–5705
    Phone: 1–800–TRIO–386 (874–6386)
    Phone: 202–293–0980
    Fax: 202–296–0973
    Email: trio@mindspring.com
    Internet: www.trioweb.org Exit Disclaimer Icon

    United Network for Organ Sharing (UNOS)

    1100 Boulders Parkway, Suite 500
    P.O. Box 13770
    Richmond, VA 23225
    Phone: 804–330–8500
    Fax: 804–330–8507
    Internet: www.unos.org Exit Disclaimer Icon

    United States Renal Data System (USRDS) Coordinating Center

    914 South 8th Street, Suite D206
    Minneapolis, MN 55404
    Phone: 1–888–99–USRDS (998–7737)
    Phone: 612–347–7776
    Fax: 612–347–5878
    Internet: www.usrds.org Exit Disclaimer Icon

Page last updated: August 20, 2012

General inquiries may be addressed to:
Office of Communications & Public Liaison
NIDDK, NIH
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
USA
301.496.3583

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