Biospecimens Interest Group
Mission: Serve as an educational and tutorial vehicle for disseminating information, best practices, regulations, and ethical/legal information formulated and issued by various NIH offices, federal agencies and other leading biospecimens organizations.
Vision:
1. To create a place where all stakeholders may exchange scientific data, ideas, and information concerning the creation and use of high quality biospecimens for research, assay validation, technology development and other appropriate uses.
2. To promote and facilitate interaction between NIH intramural and extramural stakeholders who are interested in and involved with a variety of clinically-oriented, translational research projects using high quality biospecimens.
3. To encourage leading stakeholders to address critical elements in study design and statistical analysis of data to facilitate the production of accurate, optimal, and clinically meaningful results (best outcome).
4. To educate stakeholders about the potential barriers and obstacles that may obstruct the sharing and collaboration between stakeholders across different organizations and countries.
5. To increase the awareness for the necessity of high quality biospecimens and the harmonization, and when appropriate, standardized procedures (best practices, SOPs) for annotating, collecting, transporting, processing, storing, and sharing biospecimens to ensure optimal reproducibility of outcomes and the privacy of the patients (donors) through adherence to the ethical and legal requirements associated with the use of biospecimens.
6. To provide the connectivity to various biorepositories and biospecimens around the world, especially those containing rare and difficult to get biospecimens.
Feature of the Month: Thursday, January 26, 2012
1:00 p.m. – 3:00 p.m.
Building 10 / Lipsett Amphitheatre
“Acquisition of Normal Tissues for the GTEx Program”
The speakers and their presentation titles are as follows:
“The Genotype-Tissue Expression (GTEx) Program: Scientific Goals and Objectives”
Jeffery Struewing, MD, MS, Program Director, National Human Genome Research Institute
- and -
“caHUB Support of GTEx: Overcoming Scientific and Operational Challenges to Deliver High-Quality Tissues” Carolyn Compton, MD, PhD, Director, Office of Biorepositories and Biospecimen Research, National Cancer Institute
The presentation will be broadcast live at http://videocast.nih.gov.
The Biospecimens Interest Group is supported by: The NIH Office of Rare Diseases Research (ORDR), contact: Yaffa Rubinstein rubinsty@mail.nih.gov 301-402-4338 The NCI Office of Biorepositories and Biospecimen Research (OBBR), contact: Helen Moore moorehe@mail.nih.gov 301-496-0206
Individuals with disabilities who need reasonable accommodation to participate in this presentation should contact Tracy Starr, Office of Biorepositories and Biospecimen Research, 301-496-2598 and/or the Federal Relay (1-800-877-8339).
Key Resources:
* NIH Office of Rare Diseases Research
* NCI Office of Biorepositories and Biospecimens Research
------------------------------------------------------------------------
The NIH Biospecimens Interest Group is co-sponsored by the NIH Office of Rare Diseases Research and the NCI Office of Biorepositories and Biospecimen Research
http://auth.sigs.nih.gov/biospecimens/Pages/default.aspx
Please join our listserv so we can inform you about the date, time and the place for future meetings, speakers, website and other activities --- https://list.nih.gov/cgi-bin/wa?SUBED1=biospecimens&A=1.
For information about this interest group, please contact:
Yaffa Rubinstein (ORDR) at 301-402-4338 or
Helen Moore (OBBR) at 301-496-1550
If you experience problems with this website, e-mail nihsigs@mail.nih.gov and state the issue along with the name of the scientific interest group.