Rare Cancer Genetics Registry
Contact: Dianne Finkelstein, Ph.D.
Study Website: http://www.rarecaregistry.org
| Number of Enrolled Cancer Patients/Survivors: | 600 |
|---|---|
| Years of Diagnoses of Enrolled Cancer Patients/Survivors: | 2004-present |
| Approximate Years of Follow-up: | 1 |
| Cancer Sites Represented: |
Kidney Leukemias Oral Cavity & Pharynx Pancreas Stomach Other (rare cancers) |
| Biological Specimens Collected: |
Blood/Blood Fraction Buccal Cells |
| Treatment Outcome Measures: |
Physician/Medical Record Reported
|
| Co-morbidities at Study Entry: |
Diabetes Other |
| Lifestyle Factors: |
Smoking Alcohol Use Body Mass Index Weight Loss/Control |
| Treatment Data: |
Surgery Radiation Chemotherapy Hormonal Therapy |
| Treatment Data Assessed By: | Patient Reported Questionnaire |
| Is the study open to collaboration? | Yes |
