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Data Source/Project/Initiative: Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study

Number of publications: 4

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	Authors:	Bellizzi KM, Smith A, Schmidt S, Keegan TH, Zebrack B, Lynch CF, Deapen D, Shnorhavorian M, Tompkins BJ, Simon M, Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group
	Title:	Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult.
	Type:	Journal Article
	Date:	2012 Oct 15
	Journal:	Cancer 118(20):5155-62
	Topic(s):	Economics of Cancer; Health-related Quality of Life; Survivorship
	Tumor Site(s):	Leukemia; Lymphoma; Testis; Other
	Data Source/Project/Initiative(s):	Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study; Surveillance, Epidemiology, & End Results (SEER) Program
	Keywords:	Adolescent; Adolescent Psychology; Adult; Body Image; economics; Female; Goals; Humans; Interpersonal Relations; Male; Neoplasms; Population Surveillance; psychology; Quality of Life; Social Support; Socioeconomic Factors; Survivors; Young Adult
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	→	Look up this article in PubMed

	Authors:	Keegan TH, Lichtensztajn DY, Kato I, Kent EE, Wu XC, West MM, Hamilton AS, Zebrack B, Bellizzi KM, Smith AW, AYA HOPE Study Collaborative Group
	Title:	Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.
	Type:	Journal Article
	Date:	2012 Sep
	Journal:	J Cancer Surviv 6(3):239-50
	Topic(s):	Economics of Cancer; Health Disparities; Health-related Quality of Life; Information Seeking; Patient-reported Outcomes; Survivorship; Treatment
	Tumor Site(s):	Leukemia; Lymphoma; Testis; Other
	Data Source/Project/Initiative(s):	Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
	Keywords:	none
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	→	Look up this article in PubMed

	Authors:	Parsons HM, Harlan LC, Lynch CF, Hamilton AS, Wu XC, Kato I, Schwartz SM, Smith AW, Keel G, Keegan TH
	Title:	Impact of cancer on work and education among adolescent and young adult cancer survivors.
	Type:	Journal Article
	Date:	2012 Jul 01
	Journal:	J Clin Oncol 30(19):2393-400
	Topic(s):	Economics of Cancer; Health-related Quality of Life; Survivorship; Treatment
	Tumor Site(s):	Leukemia; Lymphoma; Other
	Data Source/Project/Initiative(s):	Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
	Keywords:	Adolescent; Adult; Educational Status; Employment; Humans; Multivariate Analysis; Neoplasms; psychology; statistics & numerical data; Survivors; therapy; Young Adult
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	→	Look up this article in PubMed

	Authors:	Harlan LC, Lynch CF, Keegan TH, Hamilton AS, Wu XC, Kato I, West MM, Cress RD, Schwartz SM, Smith AW, Deapen D, Stringer SM, Potosky AL, AYA HOPE Study Collaborative Group
	Title:	Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study.
	Type:	Journal Article
	Date:	2011 Sep
	Journal:	J Cancer Surviv 5(3):305-14
	Topic(s):	Economics of Cancer; Health Care Systems; Health-related Quality of Life; Outcomes (All); Clinical Outcomes; Patient-reported Outcomes; Outcomes Research Measures & Methods; Quality of Care; Research Methodology; Survivorship; Treatment
	Tumor Site(s):	Leukemia; Lymphoma; Other
	Data Source/Project/Initiative(s):	Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study; Surveillance, Epidemiology, & End Results (SEER) Program
	Keywords:	Adolescent; Adult; Algorithms; Continuity of Patient Care; Data Collection; Female; Follow-Up Studies; Humans; Male; mortality; Neoplasms; Patient Participation; Patient Selection; Psychology; psychology; Quality of Life; rehabilitation; SEER Program; statistics & numerical data; Survivors; Young Adult
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Last modified: 11 Jan 2013	Search \| Contact Us \| Accessibility \| Privacy Policy

Cancer Risk Assessment & Prediction
Cognitive Methods in Survey Research
Decision-making
Diet
Early Life Factors
Economics of Cancer
Economics of Cancer - Cost of Illness
Economics of Cancer - Health Care Costs
Economics of Cancer - Clinical Trials
Epidemiologic, Experimental, & Methodological Studies
Epidemiology Studies & Related Methods
Genetics & Molecular Markers
Guidance & Policy Research
Health Behaviors & Survivorship
Health Care Systems
Health Disparities
Health-related Quality of Life
Information Seeking
Methods for Assessing Risk Factors
Monitoring Risk Factors
Outcomes (All)
Clinical Outcomes
Patient-reported Outcomes
Outcomes Research Measures & Methods
Palliative & End-of-life Care
Patient-centered Communication
Pharmacosurveillance
Physical Activity
Policy
Prevention
Preventive & Screening Services
Quality of Care
Research Methodology
Risk Factors
Screening
Sun Exposure
Surveillance
Survivorship
Tobacco
Tobacco - Adolescent & Young Adult
Tobacco - Attitudes
Tobacco - Health Disparities
Tobacco - Health Professional Advice
Tobacco - Home Smoking Restrictions
Tobacco - Longitudinal/Cohort Studies
Tobacco - Menthol Cigarettes
Tobacco - Modeling
Tobacco - Occupation
Tobacco - Other Tobacco Products
Tobacco - Program Evaluation
Tobacco - Quit Attempts/Smoking Cessation
Tobacco - Tobacco Control Policies
Tobacco - Tobacco Control Programs
Tobacco - Second-hand Smoke Exposure
Tobacco - Smokeless Tobacco
Tobacco - Smoking Initiation
Tobacco - Workplace Smoking Restrictions
Treatment
Weight Status

Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
American Time Use Survey (ATUS)
Assessment of Patients' Experience of Cancer Care (APECC) Study
ATBC Cancer Prevention Related Studies (ATBC)
Automated Self-administered 24-hour Dietary Recall (ASA24)
Breast Cancer Surveillance Consortium (BCSC)
California Health Interview Survey (CHIS) Cancer Control Items
CHIS - Complementary & Alternative Medicine Survey (CHIS-CAM)
Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Cancer Outcomes Measurement Working Group
Cancer Research Network (CRN)
CMS-NCI Medicare CRC Screening Pilot Project
Colorectal Cancer Screening Practice
Diet History Questionnaire (DHQ)
Eating at America's Table Study (EATS)
Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Family History Validation Study
Health, Eating, Activity, and Lifestyle Study (HEAL)
Health Information National Trends Survey (HINTS)
Healthy Eating Index (HEI) - 2005
International Cancer Screening Network (ICSN)
National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
National Health & Nutrition Examination Survey (NHANES)
National Survey of Energy Balance-related Care among Primary Care Physicians
National Survey of PCPs' Recommendations & Practices for Breast, Cervical, Colorectal, & Lung Cancer Screening
Observing Protein & Energy Nutrition Study (OPEN)
Patient-centered Care & Communication
Patient-Reported Outcomes Measurement Information System (PROMIS)
Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Patterns of Care Studies/Quality of Care Studies
Physician Survey on Cancer Susceptibility Testing
Prostate Cancer Outcomes Study (PCOS)
Rapid Response Surveillance Studies
Surveillance, Epidemiology, & End Results (SEER) Program
SEER-Medicare Linked Database
SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Tobacco Use Supplement to the Current Population Survey (TUS-CPS)

All sites or no specific site
Brain & Other Nervous System
Breast
Cervical
Colorectal
Corpus Uteri
Esophagus
Gastric
Head and Neck
Leukemia
Liver
Lung
Lymphoma
Ovary
Pancreas
Prostate
Renal
Skin
Testis
Urinary Bladder
Other