The Cooperative Study of Sickle Cell Disease Phases 2 and 3 (CSSCD, P2-3) Data Documentation
Data Documentation (includes data codebook, form, and variable counts)

 

Record Format
1) Patient Roster PDF
2) History Form PDF
3) Physical Exam PDF
4) Neurological Evaluation Form PDF
5) Laboratory Test Results PDF
6) Interim Status Report Form PDF
7) Brain Magnetic Resonance Imaging PDF
8) Brain Magnetic Resonance Angiography PDF
9) Neuropsychological Form - Child PDF
10) Accuracy of Assessment PDF
11) Neuropsychological Form - Parent PDF
12) Peabody Picture Vocabulary PDF
13) Family Environment Scale PDF
14) Achenbach Child Behavior Checklist PDF
15) Pearlin Enhanced Self-Efficacy Scale PDF
16) Life Stressors and Social Resources Inventory PDF
17) Puolmonary Function Intake Form PDF
18) Pulmonary Functin Test PDF
19) Arterial Blood Gasses PDF
20) Non-CVA Event Form PDF
21) Cerebrovascular Accident Event PDF
22) Cerebrovascular Adjudication PDF
23) Transfusioin Form PDF
24) Causes of Death PDF

 





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