| Form | Format | Codebook | Format |
|---|---|---|---|
| 1) Laboratory Form | Laboratory Data | ||
| 2) Adult Physical Exam | Adult Physical Exam Data | ||
| 3) Cause of Death | Death Data | ||
| 4) Disposition Update | Disposition Update (eligible for phase 2A, but did not enroll) |
||
| 5) Echocardiography | Echocadiography | ||
| 6) Events | Event Data | ||
| 7) Exercise Testing | Exercise Data Freqs Exercise Testing 1 Freqs Exercise Testing 2 Freqs Exercise Testing 3 Freqs Exercise Testing 4 |
||
| 8) Medical Questionnaire | Medical Questionnaire Data | ||
| 9) Nuclear Imaging | Nuclear Imaging Data | ||
| 10) Neurological Evaluation | Neurological Data | ||
| 11) Pulmonary Function Test | Pulmonary Data | ||
| 12) Adult Staus Report | Adult Status Data | ||
| (No Form) | Haplotype Data | (No Form) | Roster |
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