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DSIC Workspace - Archived Materials
Internal working documents for the DSIC Workspace
Principles of Data Sharing White Paper Deliverables
- Principles of Data Sharing White Paper
- caBIG® Data Sharing Checklist
- caBIG® Researcher Guide and Questionnaire
- Lessons Learned Document
- Data and Specimen Sharing Toolkit Presentation
Security Working Group Documents
The DSIC Workspace instituted a Security Policy Project (SPP) to begin investigating the security policies required by the caBIG® community to facilitate and protect data sharing. An ongoing Workgroup, the Security Working Group (SWG), cosponsored by the Architecture, VCDE and DSIC Workspaces, was subsequently established to combine expertise from across the caBIG® community to review the preliminary work of the SPP, gather technical information, communicate community perspectives and augment the work of the SPP. The SPP papers can be accessed via this link: https://gforge.nci.nih.gov/frs/?group_id=153
Data Sharing and Security Framework Bundle Tools and Capabilities.
- Policies
- Data Sharing and Security Framework: Provides an organization with a conceptual framework and implementing tools that facilitate an organization's data sharing activities. The DSSF implementing tools include a decision support tool that uses four types of factors to assess the sensitivity of any given dataset and to determine the desired data controls
- Data Sharing and Security Framework [v3 released 01.07.2008]
- Data Sharing Plan Guideline [v2 released 01.09.2008]
- Data Sharing and Security Framework: Provides an organization with a conceptual framework and implementing tools that facilitate an organization's data sharing activities. The DSSF implementing tools include a decision support tool that uses four types of factors to assess the sensitivity of any given dataset and to determine the desired data controls
Additional data sharing related Publications and Guidance
- Conflict of Interest Disclosure
- caBIG® Conflict Of Interest Disclosure Policy [v1 released 01.10.2006]
- Coordination with NIH & NCI
- Response to Office of Biorepositories and Biospecimen Research (OBBR) regarding its First Generation Guidelines for NCI-Supported Biorepositories [v1 released 06.29.2006]
- Response_to_NIH_on_proposed_GWAS_data_sharing_policy [v1 released 11.30.2006]
- Industry Participation
- caBIG® Industry Participation Policy: Guidelines intended to support the successful participation of commercial organizations in caBIG® meetings, teleconferences, and other activities sponsored by NCI or by NCI-funded caBIG® participants. [v1 released 05.05.2006]
- Institutional Review Board (IRB)
- caBIG® IRB Informational Teleconference Presentation: A presentation to IRB representatives on how the DSIC Workspace is identifying and addressing compliance needs related to patient confidentiality, consent, and authorization. Audience included IRB representatives of cancer centers that participate in DSIC Workspace. [v1 released 02.22.2006 ]
- Publications
- Policy on caBIG® Publications Outlines the policies and procedures surrounding the publication of caBIG®-related documents [v1 released 01.10.06]
- Statement on Academic Publications Related to caBIG® A statement presenting a consensus view of principles endorsed by the caBIG® community for the development of manuscripts prepared for submission to peer-reviewed journals that describe research using software, data repositories, or other resources funded by the National Cancer Institute (NCI) under its caBIG® initiative [v1 released 05.16.2006]
Archived Materials from Older Meetings
Face-to-Face Meeting Materials
Archived DSIC Workspace Documents
Security
- Security Administration Recommendations for caBIG® A whitepaper that proposes a standard for addressing issues of security administration, including authorization, authentication, access control, provenance, and usage auditing of caBIG® systems and resources. [v1 released 12.14.2004]
Data Sharing Related Papers and Presentations
- Principles of Data Sharing White Paper
- Lessons Learned Document
- Data and Specimen Sharing Toolkit Presentation
- HIPAA Summit XIII Presentation: Privacy and Security in caBIG® - A presentation about caBIG® and HIPAA-related issues. [v1 released 09.26.2006]
