Monthly Archives: November, 2012
Commission’s “Moral Science” Report Making an Impact
Less than a year after its release, the Commission’s report, Moral Science: Protecting Participants in Human Subjects Research, is having a noteworthy impact in the research community. Recently, stakeholders have taken concrete steps to implement two of the Commission’s recommendations, namely, those concerning accountability through public access and promoting community engagement. As part of its [...]
The Question of Incidental Findings in Whole Genome Sequencing
A mother of three young children enrolls in a breast cancer research study in which researchers will sequence her entire genome to look for variants that might contribute to developing breast cancer. As researchers analyze her genome, they discover that she has markers associated with hereditary non-polyposis colorectal cancer (HNPCC), a hereditary syndrome that is [...]
Empowering Patients through Informed Consent
If your doctor recommended that you have your whole genome sequenced, you would likely have a lot of questions, including: Where will my data be stored? Who will have access to them? Will they be secure? Can I control who sees the information gathered from my data? How will my information be kept private? Is [...]
Commission Will Take More Time on Medical Countermeasures for Children
In Administrative session yesterday, Members noted that the Commission is dealing with incredibly complex and difficult issues and that it is covering new ground in pediatric research ethics. Members agreed that the Commission must take the time it needs to address this topic carefully, thoroughly and transparently.
APHA Executive Director to address Commission
Dr. Georges Benjamin, executive director of the American Public Health Association, will speak to the Presidential Commission for the Study of Bioethical Issues at its eleventh public meeting being held today and tomorrow in Chicago.
Dr. Alan R. Fleischman will address Commission
The Commission begins its meeting in Chicago by taking a closer look at the work of one of its predecessor Commissions – the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research – and the practical impact of its work today. The National Commission’s 1977 Report, Research Involving Children, laid the [...]
Commission in Chicago
The Presidential Commission for the Study of Bioethical Issues is meeting today and tomorrow in Chicago (November 5-6, 2012).
