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National Committee on Vital and Health Statistics

Subcommittee on Privacy and Confidentiality

Tentative Agenda - Hearings on Privacy and Health Information Technology

February 23-24, 2005

Hubert H. Humphrey Building, Room 705-A
200 Independence Avenue, S.W.
Washington, D.C. 20201

Meeting Minutes

	Day One – February 23, 2005 Transcript
9:00 to 9:15 a.m.	Introductions and Opening Remarks	Mark Rothstein, J.D., Chairman
9:15 to 11:00 a.m.	Panel 1 -  What is health privacy and why is it important?
	Background	Thomas Murray, PhD, The Hastings Center
	Dimensions of health privacy	Anita Allen-Castellito, JD, PhD, University of Pennsylvania
	Comparative notions of health privacy	Bartha Maria Knoppers, PhD, University of Montreal
11:00 to 11:15 a.m.	Break
11:15 to 12:15 p.m.	How the Public Views Health Care, Privacy, and Information-Technology Applications	Alan Westin, J.D., Columbia University
12:15 to 1:20 p.m.	Lunch
1:20 to 3:00 p.m.	Panel II -  Privacy in health care and in society
	Privacy and health care	Bernard Lo, M.D., University of California, San Francisco
	Patient interests	Joy Pritts, J.D, Health Policy Institute, Georgetown University
	Privacy and substance abuse isssues	A. Thomas McLellan, Executive Director, Treatment Research Institute
3:00 to 3:15 p.m.	Break
3:15 to 3:45  p.m.	Statements from the Public
3:45 to 4:30	Subcommittee discussion
4:45 p.m.	Adjourn

	Day Two – February 24,  2005 Transcript
9:00 to 9:15 a.m.	Introductions and Opening Remarks	Mark Rothstein, J.D., Chair
9:15 to 10:45 a.m.	Panel III -  Disease and Health Advocacy Groups	Len Lichtenfeld, M.D., F.A.C.P., Deputy Chief Medial Officer, American Cancer Society PowerPoint Presentation Robert Levine, M.D., Chairman of Communications, Juvenile Diabetes Research Foundation Article Linda Rosenberg, M.S.W., President and CEO, Nat'l Council for Community Behavioral Healthcare
10:45 to 11:28 a.m.	Break
11:28 to 12:15 a.m.	Subcommittee Discussion
12:15 to 1:00 p.m.	Lunch
1:00 to 2:15 p.m.	Panel IV -  Consumer Advocacy Groups	Linda Golodner, President, National Consumers League Joyce Dubow, Associate Director, AARP Public Policy Institute, AARP
2:15 to 2:30 p.m.	Break
2:30 to 3:45  p.m.	Panel V – Privacy Concerns Related to Personal Health Records	Janet Marino, M.D., Medical Informatics Consultant, MedicAlert Wendy Angst, M.H.A., General Manager, CapMed
3:45 p.m.	Adjourn

• Written Testimony by Sue A. Blevins, Founder and President Institute for Health Freedom
• Written Testimony by Robin Kaigh

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible. Times, topics, and speakers are subject to change. For final agenda, please call NCHS at 301-458-4200 or visit the NCVHS Home Page at http://www.ncvhs.hhs.gov/

02/16/05