Agenda of the August 1-3, 2007 NCVHS Ad Hoc Workgroup for Secondary Uses of Health Data

Final Agenda

NATIONAL COMMITTEE ON VITAL AND HEALTH STATISTICS

Ad Hoc Workgroup for Secondary Uses of Health Data

August 1 - 3, 2007

Wilbur J. Cohen Building
300 C. Street, S.W., Room 5051
Washington, DC 20201

Printable Acrobat Agenda

	Wednesday, August 1 Transcript
	Context Setting, Background on Seminal Work
9:00 – 9:15 a.m.	Introductions and Overview	Simon Cohn, M.D., M.P.H., Chair, NCVHS and Ad Hoc Workgroup for Secondary Uses of Health Data
9:15 – 10:00 a.m.	Key Opportunities and Challenges in Framing Uses of Health Data	John Lumpkin, M.D., M.P.H. Wendy Patterson, caBIG
10:00 – 10:15 a.m.	Break
	Perspectives on Uses of Health Data
10:15 – 12:00 a.m.	Quality Perspectives	Joel Goldwein, M.D., Oncology Data Alliance, Elekta, Inc., Impac Scott Young, M.D., Archimedes DM Model (by phone)
12:00 – 1:15 p.m.	Lunch
1:15– 2:30 p.m.	Secondary/Tertiary Uses	Jean Chenoweth, Solucient Top 100 Hospitals
2:30 – 2:45 p.m.	Break
2:45 - 4:00 p.m.	Public Health/Statewide Planning Perspectives	David Carlisle, California Office of Statewide Health Planning Leslie Lenert, M.D., Centers for Disease Control and Prevention Vickie Hohner, Fox Systems (by phone)
4:00 – 5:30 p.m.	Working Session

	Thursday, August 2 Transcript
	Perspectives on Uses of Health Data, Con't.
8:30 – 10:00 a.m.	Research Perspectives: Quality vs. Research; Data Use Agreements; IRB	Marcelline Harris, R.N., Ph.D., Mayo, ANA Sharon Terry, Genetic Alliance Margaret Gunter, HMO Research Network and Lovelace Clinic Fdn/NM RHIO
10:00 – 10:15 a.m.	Break
10:15 a.m.– 11:45 a.m.	Health Plan Perspectives	Carmella Bocchino, America's Health Insurance Plans Shirley Lady, Blue Cross Blue Shield Association - BHI Deborah Peel, M.D., Patient Privacy Rights Foundation
11:45 – 1:00 p.m.	Lunch
1:00 – 2:30 p.m.	Data Sharing Perspectives -Longitudinal Data in NHIN -New IOM Panel on Privacy -Transparency and Authorization/Consent "on the ground"	Karen Adams, M.D., NQF Senior Program Director Additional Material Sharyl Nass, Ph.D., Study Dir. IOM Privacy Committee Barbara Siegal, American Health Information Management Association
2:30 – 2:45 p.m.	Break
2:45 – 5:30 p.m.	Working Session

	Friday, August 3 Transcript
8:30 - 10:00 a.m.	Working Session Framework Draft Discussion Taxonomy Draft Discussion	Dr. Cohn
10:00 -10:55 a.m.	Planning and Next Steps	Dr. Cohn
11:00 a.m.	Adjourn

Note: Written Testimony submitted by: Deborah Collyar, President, Patient Advocates in Research (PAIR)

August 10, 2007