Agenda for the November 13-14, 2003 NCVHS Subcommittee on Populations Hearing

Public meetings of the NCVHS are broadcast live on the Internet.
Live Broadcasts can be heard on the Veterans Administration webpage at: http://www.va.gov/audiohhs.htm To listen to an audio broadcast, you need Real Player software, which is available free from the Real Networks (Real.com) website. Recordings of broadcasts from the past six months are available from theVA Virtual Conference Archive.

Final Agenda

National Committee on Vital and Health Statistics

Subcommittee on Populations

Hearing on Health Data Needs for Asian, Native Hawaiian and Other Pacific Islander Populations

November 13-14, 2003

The Palace Hotel
2 New Montgomery Street
San Francisco, CA 94105
Phone: 415.512.1111

Call-In Number: 1-877-939-8305, Participant’s Code: 278561

Meeting Minutes

	Thursday, November 13 Transcript
9:00 a.m	Welcome and Introductions	Vickie Mays, Ph.D., M.S.P.H., Chair
9:05 a.m.	Overview of Subcommittee on Populations, NCVHS, Purpose for Hearing and Review of the Agenda	Chair
9:20 a.m.	A National Perspective on ANHOPI Health Data Needs	Christina Perez, Regional Minority Health Coordinator, Region IX
9:30 a.m.	Overview of Pacific Island Health Data Issues	Christina Perez, Regional Minority Health Coordinator, Region IX
9:50 a.m.	Break
10:00 a.m.	The Need for Detailed ANHOPI for Health Policy	Ho Tran, M.D., Asian Pacific Islander American Health Forum Policy Brief
10:20 a.m.	Accessing ANHOPI Data	Gem Daus, Asian Pacific Islander American Health Forum Census Information Center Census Data
10:40 a.m.	Questions and Discussion	Members and Staff
10:50 a.m.	BREAK
11:00 a.m.	ANHOPI Measurement and Classification Issues	Elena Yu, Ph.D., The Johns Hopkins University
12:00 noon	Questions and Discussion	Members and Staff
1:00 – 2:15 p.m.	LUNCH
2:15 p.m.	Questions and Discussion	Members and Staff
2:45 p.m.	Subcommittee Deliberation of Testimony	Members and Staff
4:45 -5:00 p.m.	ADJOURN AND CLOSING COMMENTS

	FRIDAY, November 14, 2003 Transcript
9:00 a.m	Welcome and Introductions	Vickie Mays, Ph.D., M.S.P.H., Chair
9:15 a.m.	Healthcare Quality Indicators For ANHOPI Populations	Ellen Wu, California Pan Ethnic Health Network
09:35 a.m.	Asian Americans and Cancer	Scarlett Lin Gomez, Ph.D. Northern California Cancer Center
09:55 a.m.	Questions and Discussion
	Health Data Needs for Pacific Islanders
10:45 a.m.	Palau Telephone Conference Presentation	Greg Dever, M.D., Director, Bureau of Hospital & Clinical Services Julie Tellei Cultural Specialist Palau Ministry of Health
11:15 a.m.	Questions and Discussion
12:00 p.m.	LUNCH
01:00 p.m.	Hawaii	Catherine Sorenson, Ph.D., Dept. of Health, Hawaii
01::15 p.m.	Qualitative Data Issues for Native Hawaiians and American Samoans	Carol Murray, Dr.PH, University of Hawaii at Manoa Hardy Spoerhr, Executive Director, Papa Ola Lokahi Gerald Ohta, Hawaii Dept. of Health
01:45 p.m.	Questions and Discussion	Members and Staff
02:15 p.m.	Subcommittee Deliberation of Testimony	Members and Staff
03:30 p.m.	Next Steps - Adjourn

11/10/03

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.

Times, topics, and speakers are subject to change. For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at http://www.ncvhs.hhs.gov/

HEARING QUESTIONS

For Pacific Island populations, what techniques are used to collect data on race and ethnicity? How does language, population size or population geography impact the ability to gather data on the health status, health behaviors, and health experiences of these populations? What recommendations could you make to DHHS for addressing these issues?

Do you believe that there is a significant problem of misclassification of racial and ethnic categories in existing data sets? For which data sets? For which categories? What steps, such as possibly partnerships with advocacy groups, are in place for studying the issue and for making corrections?

Is data collected on ethnicity, language spoken and national origin in ongoing surveillance data sets? On what data sets are these data collected? Please provide examples.

What barriers exist to data collection, analysis and disease surveillance for eliminating health disparities in ANHOPI populations? Describe strategies that DHHS could use to remove those barriers.

Is data collected on ethnicity, language spoken and national origin in ongoing surveillance data sets? On what data sets are these data collected? Please provide examples. What types of health data would you recommend that DHHS collect?

Current data collection methods emphasize the protection of the privacy and confidentiality of survey respondents and require a certain number of responses in order to report data. Given these considerations as applied to small populations, what number of responses would you feel are to low to report?

What are some strategies that DHHS could use to increase the capacity? for ANHOPI researchers and organizations to conduct health disparities research, demonstrations and evaluations?

Please describe the strategies that DHHS could use to support relationships between universities, academic researchers, communities and State and local health entities.

Are there any accountability mechanisms you recommend that DHHS could institute? to ensure the development and maturation of these partnership relationships?

How could DHHS support partnerships with ANHOPI communities to improve safety and quality in health care?

Do the race and ethnic guidelines from OMB have adequate utility for the ANHOPI populations or is there a need to collect information using other or expanded categories?