September 26, 2003
The Honorable Tommy G. Thompson
Secretary
Department of Health and Human Services
200 Independence Avenue, SW
Washington, D.C. 20201
Dear Secretary Thompson:
The National Committee on Vital and Health Statistics (NCVHS) through its Subcommittee on Populations continues to assess the adequacy of federal data to document and monitor the health of racial and ethnic minorities in the United States and its territories. Such data are necessary to monitor the Department's strategic plan to eliminate health disparities. These data also can be used to determine the extent to which Departmental initiatives are contributing to the health needs of specific racial and ethnic minorities.
The single most compelling and recurrent request that the Subcommittee heard in its four recent hearings is for the collection and analysis of health data on subgroups of specific racial and ethnic minorities, especially those concentrated in geographically distinct areas. These data are urgently needed to adequately monitor the health status and health care quality of the diverse US population. Those who provided testimony (e.g., American Indians and Alaska Natives, Native Hawaiians, Asians and Pacific Islanders) indicated that the lack of quantitative data both hampered their planning and delivery of health care in their communities, and put them at a serious disadvantage in their attempts to compete for State and federal funding. Convincing cases were made at the hearings for periodic health surveys that could be used by specific racial and ethnic minorities in their communities.
Based on what the Subcommittee learned from these hearings, the NCVHS recommends that HHS should:
There are many special considerations for collection of high quality data on racial and ethnic minorities. In additional to statistical sampling issues, these include cultural proficiency (concepts, methods, outreach, selection and training of interviewers); adequacy and availability of translation; and insuring community involvement in outreach, and translation of research into policy and practice. Support for methodological research is essential in order to determine the most effective way to meet these goals.
We recognize that financial resources are limited, but compelling evidence shows that specific racial and ethnic minority populations experience poorer health and inadequate health care. Consequently, we urge the Department to request adequate funding to support the above recommendations. These recommendations are consistent with those made in a recent General Accounting Office report to Congress. The NCVHS believes that these recommendations will make a significant contribution to the important HHS goal of eliminating racial and ethnic disparities in health, as well as disparities based on other factors.
Thank you for your consideration of these recommendations.
Sincerely,
/s/
John R. Lumpkin, M.D., M.P.H.
Chair, National Committee on Vital and Health Statistics
cc: HHS Data Council Co-Chairs